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‘Your baby is breathing 100 times per minute and still not getting oxygen.’ I felt so angry. I wanted answers.’: Mom ‘crushed’ by Childhood Alzheimer’s diagnosis, ‘we spoil her every day’

“I was at work, six months pregnant, when I saw the doctor’s office was calling. I naively answered. I shouldn’t have. ‘The older she gets, the more her body and mind will fade away.’ I didn’t want to call my husband. I wanted to crawl in bed and never come out. We spend each day wondering, ‘Will today be her last? Will she recognize me tomorrow?’ Our sweet, perfect, little girl was dying.”

‘Does the baby look okay? Anxiety twisted knots inside me. Nobody quite saw the almond eyes, sweet smushed nose. Then, I said what we’d been internalizing all along.’ Mom diagnoses her own baby after doctors fail to see signs

“No family history? Phew, he doesn’t have it. Ears set low? He must have it. ‘I can’t see his face!’ I hoped the sweet, blonde tech knew this was code for, ‘Does my baby have Down Syndrome?’ There was stumbling, stuttering. ‘How old are you?’ Wait WHAT? Sirens were spinning in my head. This is it, I thought. He has IT.”

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