invisible illness

‘Can I go to the nurse’s office?’ I was dizzy, ready to faint. My teacher turned to me and said, ‘Absolutely not. Sit down.’ She didn’t believe me.’: Young woman recounts journey with Type 1 Diabetes

“In a slight state of shock, I asked again. ‘It’s an emergency.’ She continued to dismiss my requests and began completely ignoring me. She didn’t believe me. Furious and embarrassed, I walked out of class against her will. I hid my illness from the world.”

‘My boyfriend who ‘loved me’ broke up with me over the phone once I was in the hospital. My health deteriorated at lightning speed.’: Woman details journey with Crohn’s Disease, ‘You can rise above and flourish’

“I went from being a perfectly healthy 21-year-old with the world by the tail to 105-degree fevers every day. One day, my mom found me lying on the couch at dinner time in my pajamas from the night before. ‘It’s time to get to the bottom of this.’ Something wasn’t right, but we couldn’t put our fingers on it.”

‘I kept getting multiple UTIs. A male doctor asked, ‘Do you think the pain might be ALL IN YOUR HEAD?’ I felt mortified.’: Woman with chronic urinary tract infections urges ‘you are not alone’

“I’d receive a 3-day course of antibiotics and be sent on my way. It would clear up, but come back with vengeance. I was told it was ‘just because I was WITH my boyfriend.’ Fair enough, sex can be a cause, but what did other people do? Stay single for the rest of their life? I was at a loss. All the doctors suggested I was exaggerating.”

‘My mother and stepdad sent me with a strange man in the middle of the night. ‘Was I traded for drugs?’ I was ten years old.’: Woman overcomes childhood trauma and rape, ‘I learned the power of letting go’

“As I threw the rock into the river, I said, ‘I forgive you,’ letting go of all the pain and resentment I had been carrying. Don’t get me wrong… the people who abused me in my past, who were supposed to care for me and protect me, did NOT deserve my forgiveness.”

‘Bring me breakfast in the morning if we’re still here,’ joked the doctor. The treatments were painful, I tried to be brave.’: Woman describes her journey with Complex Regional Pain Syndrome, ‘I never had a childhood, but hope I can have a good adulthood’

“I was always fragile. When I wasn’t sick, I was injuring myself. My skin would turn purple and red with spots, and everything burned to the touch. I was probed with questions and faced with students’ and faculty’s disbelief. ‘You don’t look sick.’ Using the school’s only elevator resulted in harassment.”

 Share  Tweet