Isolation

‘He can never leave the house.’ We have not seen our family or friends in over a year.’: Mom of severely immunocompromised son says ‘I am tired of headlines saying only the vulnerable will die’

“His doctors were hopeful we could take him out of the house for the first time EVER this summer. We could introduce him to his family members and friends. We could let him play on a playground, like a normal toddler. However, now our future is unknown again as the pandemic has erupted.”

‘To be fully honest, if I didn’t stay busy, I’d eat all of the quarantine snacks while standing in my kitchen staring at my phone.’: Quarantined mom urges ‘take it all one day at a time’

“Within a quick 24-hours, I became a full-time-working-stay-at-home-full-time-home-schooling-mom. I had no idea how it was all going to happen. Hell, I’d be happy with a general idea or suggestion of how this all will play out! I know we will figure it out, but I have a sneaking suspicion it’s going to be a lot of building the plane while we fly it. And I have to be okay with that.”

‘I see you refusing to give up your nights out with friends, your weekend bar visits. I see you, and quite frankly, I’m fed up. My life is on hold.’: Woman with chronic illness says ‘we are vulnerable and we matter’

“I have to be honest. For the first few weeks, I thought it was being blown out of proportion. I thought people were unjustifiably scared. I was wrong. Infusion centers have completely shut their doors. Health companies are refusing to send supplies and nurses. My life is on hold, my health is on hold — with no known end in sight.”

‘We need to talk, Kayleigh. The amount of water you’re drinking is drowning your body.’: Woman talks about fighting mental illness, ‘You don’t have to believe your thoughts.’

“I kept saying, ‘I don’t know, I don’t remember, I don’t think so.’ I felt so stupid. Like had I not been living in my own body? How come I didn’t know how much I have been sleeping, or using the washroom, or what day it was for that matter? Healing was for people who had time to sit around and think about their problems.”

‘Stop, you’re holding him too close.’ I ignored them, rarely letting go. I assumed everyone was this fiercely protective.’: Mom shares battle with postpartum anxiety, ‘I had no idea why I was suffering’

“Night upon night were panic-filled dreams, cold sweats. I’d frantically fumble through the sheets in search of my baby, who I was convinced I’d rolled on in my extreme state of exhaustion. Everywhere we went, I envisioned horrible things. I became the mother who hovered beneath the play equipment and fed only pureed food in fear he would choke. My mom friends stopped trying. Offers for play-dates and coffee meets ceased.”

‘Penny is nonverbal, but please don’t make her a prop. She is not your ‘disabled best friend.’: Dad touched after stranger’s rare ‘act of empathy’ for daughter with Aicardi syndrome, ‘the world needs more people like her’

“I’ve experienced too many instances of people taking selfies with Penny and posting them all over social media. Penny is not your ‘Disabled Best Friend,’ or a chapter in your Facebook Story. Please don’t exploit a non-existent relationship with a disabled child in a wheelchair to demonstrate to your friends and family how wonderful you are. She just wants to belong.”

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