“The doctor glanced at my son’s chart, looked up at me, and said, ‘I’m going to go get you in to see the best pediatrician we have.’ I remember running into her arms saying, ‘Thank you. Thank you for finding something.’”
‘He was dying before my eyes. Doctors said, ‘He must be teething.’ He cried for 18 hours a day.’: Mom births baby with rare neurodegenerative disease, ‘Listen to your gut’
‘There’s something wrong with her!’ My mom looked at my triangular-shaped face.’: Woman with rare form of Dwarfism defies ‘grim’ life expectancy, ‘never gave up’
“My mom was pregnant with twins when doctors quickly realized I was growing a lot slower and smaller. Being a nurse, she knew diagnosis was grim. My dad got a call from my mom saying her water broke and he needed to get back to the hospital as fast as he could. Baby A, which was me, was ready to come out and see the world! Everyone else was not.”
‘Graduating isn’t possible.’ My body was shutting down. But I was going to get my degree one way or another.’: Woman finds ‘strength, faith’ among tumor discovery and multiple chronic diagnoses
“She had only ever seen once in her career. My world completely stopped. I had to quit all my activities. I was separated from everyone. And just when I thought there might be light at the end of the tunnel, we got more life changing news. I bet you’ve never heard someone wanting to go to school so badly, but I did. I just wanted to feel normal again.”
‘Our sweet little girl’s heart quit beating’: After devastating loss, family expected another, until a MIRACLE happened
“We heard the most amazing noise… Eleanor’s cry! We weren’t expecting this. Her prognosis is now to live life without limits! Our goal is to get her there.”
