“A few hours after going to the doctor, I was out shopping with my husband. He handed me the phone. ‘It’s the pediatrician.’ My heart stopped. Why was he calling so soon? And why was HE calling and not the nurse this time?! Then, he said the words I’d been fearing since Tessa’s birth. I didn’t have the strength to stand. I fell to my knees. I had no idea how to move forward.”
“It’s known as the ‘great imitator’ because it is good at presenting as other things: the flu, even cancer.”
“‘Your son either has an infection, or he has leukemia.’ My heart stopped in that moment. I didn’t know if I was ever going to be able to take my son home, or if I was going to lose him.”
“She saved me, more than once, she saved me… little by little I was able to find joy in life again.”
With having a moderate case of progeria and knowing I aged faster, I was terrified I would never find someone to love me for who I was.