lily’s little lungs

‘You must be so relieved. I bet you can’t wait to take her to Target.’ This medical hell would follow us home for years to come.’: Mother shares reality of daughter’s tracheostomy post NICU, ‘If I was going to do this, I’d become the best damn trach parent ever’

“If I was going to do this, I’d become the best damn trach parent that ever lived. The reality is, while our NICU chapter is over, this is far from normal. I can’t take Lily to the store, or anywhere, alone. My husband and I haven’t been alone in 4 months. One of us needs to be awake around the clock to care for her. There is no longer privacy in our home as our ‘special guests’ come in and out all day and night.”

‘I chose to wear headphones. I didn’t want to hear or see Lily, afraid she would die. I kept my eyes affixed on my husband.’: Parents who lost twin daughter navigate marriage through tragedy, ‘We weren’t remotely prepared for what lay ahead’

“My husband encouraged me to look at my 1-pound daughter. If Lily died, we agreed to sell all our belongings and move to a beach in Hawaii, disappearing until we felt strong enough to return – but Pat knew Lily was strong enough to survive. I had intense, terrifying thoughts. This is not what we anticipated when we took our vows, but we faced each day together. We’ve come so far from stupid teenagers breaking curfew for 5 more minutes together, but if they could look ahead, I know they’d be pretty damn proud of us, too.”

‘How the hell did I end up here?’ It took me months to say, ‘My child died.’ We hung her stocking. I’m finally ready.’: Mom celebrates stillborn during holidays for surviving twin to know ‘her sister’s spirit is with her for her lifetime’

“I can’t tell you how many times I’ve answered, ‘How are you?,’ with a forced, fake, ‘Hanging in there!’ just to make the conversation easier. We hung her Christmas stocking on the mantle this year. I am painfully aware that on Christmas morning, that stocking will hang empty as the others burst with gifts. ‘Why me? Why our family?’ But for now, we honor her absence. I am finally ready.”

‘Millions of dollars later, we’re finally home. I get to spend each day with the most amazing 14-pound child imaginable. Dammit, Baby B.’ Family’s amazing journey to overcome infertility

“I bled abundantly, but both babies continued to grow. My husband and I would leave appointments joking ‘dammit Baby B!,’ partially to prepare her for a lifetime of playful comparison, and partially to protect ourselves if something ever happened. We went into our 20-week scan assuming things were perfectly fine. They weren’t.”

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