limb difference

‘The ultrasound tech got quiet. He dug into my stomach. ‘We can’t find her limb. Termination is always an option.’: Special needs mom says daughter has ‘changed my life for the better’

“We were newlyweds. I took a pregnancy test, honestly not expecting it to say PREGNANT. I felt a rush of emotions. ‘What are people going to think?’ The morning after the ultrasound, the nurse said, ‘Her esophagus isn’t connected to her stomach.’ She went in for surgery at 4 days old. ‘We found something else.’ How could the doctors have missed this? ‘We need to cut both sides of her chest.'”

‘I was 19, pregnant. ‘Your baby is missing arms and legs. I’m only seeing 2 toes and a partial foot.’ I thought it was some cruel joke.’: Teen mom births baby with phocomelia, ‘He beat all the odds’

“Evan was whisked away immediately after birth. My stepmother grabbed my mother and left the room. Both were visibly shaken. I overheard them in the hall: ‘You’ve got to get it together. They need us now more than ever!’ The doctor entered. ‘Ms. Sanchez, there is a problem. Your son’s spine is severely twisted and growing out of the side of his back. If this continues, it will pull his ribcage into his heart and kill him.’ I was devastated.”

‘You’re not special enough to be my girlfriend.’ I cried. He was embarrassed by my prosthetics.’: Amputee learns to own her uniqueness, ‘My life isn’t normal, but I wouldn’t have it any other way’

“The technician noticed something wrong with my legs. They were shaped like a boomerang. I only had 3 toes on each foot. My feet were turned inwards and pointed down, and my ankles couldn’t rotate. The doctors gave my parents a choice: ‘Amputate her legs or never let her walk.’ When I got pregnant, I wasn’t physically prepared for what was to come. I had no idea how it would affect my body, let alone my prosthetics. I was terrified.”

‘It appears your baby did not develop a left forearm or hand.’ My whole body was shaking. It was surreal.’: Mom celebrates child born with limb difference, ‘In our eyes, he was perfect’

“Our brief phone call couldn’t have been longer than 5 minutes, yet it changed everything we knew or expected for our future. I had been hoping that they were wrong. Terrified of the unknown, I put off buying anything for our baby. I smiled throughout my baby shower I didn’t even want to attend.”

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