“We were newlyweds. I took a pregnancy test, honestly not expecting it to say PREGNANT. I felt a rush of emotions. ‘What are people going to think?’ The morning after the ultrasound, the nurse said, ‘Her esophagus isn’t connected to her stomach.’ She went in for surgery at 4 days old. ‘We found something else.’ How could the doctors have missed this? ‘We need to cut both sides of her chest.'”
‘The ultrasound tech got quiet. He dug into my stomach. ‘We can’t find her limb. Termination is always an option.’: Special needs mom says daughter has ‘changed my life for the better’
‘What’s wrong with her?’ Comments now change to, ‘How cute, her doll looks just like her!’: Woman creates special needs dolls, ‘Our differences make us beautiful’
“Adults will say, ‘Having a doll that looked like me could have been a game-changer,’ or ‘I struggled my whole life with how I looked.’ Those little faces light up when they realize the doll they are holding is THEM!”
‘I was 19, pregnant. ‘Your baby is missing arms and legs. I’m only seeing 2 toes and a partial foot.’ I thought it was some cruel joke.’: Teen mom births baby with phocomelia, ‘He beat all the odds’
“Evan was whisked away immediately after birth. My stepmother grabbed my mother and left the room. Both were visibly shaken. I overheard them in the hall: ‘You’ve got to get it together. They need us now more than ever!’ The doctor entered. ‘Ms. Sanchez, there is a problem. Your son’s spine is severely twisted and growing out of the side of his back. If this continues, it will pull his ribcage into his heart and kill him.’ I was devastated.”
‘I love you, and I promise I will be back.’ My son looked up in terror as they carried me out. I came to the horrifying realization I made a bold promise.’: Woman survives Ewing’s Sarcoma, leg amputation, ‘Life is too short to not do what makes you happy’
“I was crying and screaming as they carried me out. ‘You’re exaggerating and pain pill seeking.’ I only had a week to get my affairs in order. I made sure my son would remember me.”
‘You’re not special enough to be my girlfriend.’ I cried. He was embarrassed by my prosthetics.’: Amputee learns to own her uniqueness, ‘My life isn’t normal, but I wouldn’t have it any other way’
“The technician noticed something wrong with my legs. They were shaped like a boomerang. I only had 3 toes on each foot. My feet were turned inwards and pointed down, and my ankles couldn’t rotate. The doctors gave my parents a choice: ‘Amputate her legs or never let her walk.’ When I got pregnant, I wasn’t physically prepared for what was to come. I had no idea how it would affect my body, let alone my prosthetics. I was terrified.”
‘It appears your baby did not develop a left forearm or hand.’ My whole body was shaking. It was surreal.’: Mom celebrates child born with limb difference, ‘In our eyes, he was perfect’
“Our brief phone call couldn’t have been longer than 5 minutes, yet it changed everything we knew or expected for our future. I had been hoping that they were wrong. Terrified of the unknown, I put off buying anything for our baby. I smiled throughout my baby shower I didn’t even want to attend.”
‘He loved me for who I am, I want everyone to see exactly who I am! I will never be ashamed again.’: Woman with prosthetic leg learns to love herself after tragic loss of husband, ‘If you live with a disability, a malformation, a birthmark–DON’T feel like you need to hide it!’
“When I was about 23, I got my robot leg. I did wear dresses but I didn’t like to wear anything too tight on my butt because you can see the edge of the prosthetic. I hated it. I was so ashamed of showing that part of my body. The shamefulness slowly disappeared, this summer when I lost my husband in a motorcycle accident.”
‘A 3-legged dog and a one-armed wife? We even each other out!’ Sandy was always meant to be mine.’: Woman with anxiety disorder, limb difference finds ‘angel’ therapy dog
“One day, Sandy sat by my bed. I hadn’t walked 50 steps in over a year. She was DONE. ‘What’s up, Sandy?’ She looked right at me and barked! ‘What is it?’ She barked again! I said, ‘Oh, please. What in the world are you doing?’ She was egging me to get up, to move. She wouldn’t quit until I walked. Once I took just a step, she stopped and laid down! Sandy started me on my journey back to life. She took away my fear and, in return, let me give her something I so desperately needed: unconditional love.”
‘There’s an issue with her hand.’ I was scared. It was inverted backwards, and she only had 3 fingers.’: Mom ‘shocked’ after daughter born with limb difference, ‘I was determined to protect her every way I could’
“The moment I gave birth to her, I noticed the doctor and nurses exchanged glances. They wrapped her up before handing her to me. ‘We want to get her cleaned up first.’ I didn’t understand. I quickly opened her up and checked. I was shocked. I told my husband, ‘God created her like that.’ The doctors were accusing me I ‘must’ve taken drugs’ while I was pregnant. ‘Her deformity is the reaction the drugs had on the baby,’ they said. Babies ‘like these’ come with ‘a lot of baggage.’ She is different, not less.”
‘How dare she take away my unique quality?’ I was the ‘girl with one arm.’ I was MORE popular.’: Young woman with missing arm always embraced her difference, ‘My sparkle is who I am on the inside’
“I was scared boys wouldn’t want to date me because of my arm, and I was scared of going in public because I did not want strangers to ask questions. I remember one time a kid got angry with me and said, ‘You one-armed freak!’ It hurt. People would say, ‘You are so brave! You are so inspiring!’ It was annoying! I wasn’t doing anything different than the other children.”
