“My parents comfort me by saying, ‘We will get through this.’ I needed oxygen pumped into my nostrils at all times to breathe. I was afraid I was dying. I’ve seen videos where they interview elderly people on their deathbeds who are asked what they regret in life. Most people regret not having lived passionately, fulfilled and happy. I believed I would be one of them if I didn’t make a change.”
‘It’s time to consider a lung transplant.’ I was terrified of dying before I’d started living.’: Young woman with Cystic Fibrosis fights ‘to live the fullest life I can, in the time I am given to live it’
‘Your baby is breathing 100 times per minute and still not getting oxygen.’ I felt so angry. I wanted answers.’: Mom ‘crushed’ by Childhood Alzheimer’s diagnosis, ‘we spoil her every day’
“I was at work, six months pregnant, when I saw the doctor’s office was calling. I naively answered. I shouldn’t have. ‘The older she gets, the more her body and mind will fade away.’ I didn’t want to call my husband. I wanted to crawl in bed and never come out. We spend each day wondering, ‘Will today be her last? Will she recognize me tomorrow?’ Our sweet, perfect, little girl was dying.”
‘This will be the last time we see each other,’ she said, tears in her eyes. I looked at her, puzzled. ‘Don’t be so dramatic.’: Woman overcomes years of emotional abuse
“On my wedding night, she grabbed me by the shoulders. ‘I’ll see you tomorrow at the house.’ Little did I know, these words were going to be our last. She decided to go out with a bang, turning what was supposed to be a joyous day into a painful one. She couldn’t bear to see me happy.”
‘Take your shirt off!’ Instead of helping her, they pointed or laughed. She said, ‘I don’t want him to feel how he made me feel.’
“Her spine was collapsing. Her ‘best friend’ no longer wanted to talk to her. She lost the ability to sit up, walk, or do anything herself.”
‘The nurse checked if my skin was salty to confirm her suspicions. She was right. I came out of the hospital and immediately changed my job.’: Woman diagnosed with ‘life-threatening’ Cystic Fibrosis, ‘I couldn’t be more alive’
“I was rushed to the hospital into intensive care. I was not expected to survive, but luck seemed to be on my side. The nurse who was caring for me suspected what it was – her daughter also had it.”
‘Doctors couldn’t figure out why I was so unlucky, they would tell my mom she was worried for nothing, kids my age are always sick. My mom knew something wasn’t right.’
“My mom noticed a hump on one side of my back but didn’t think anything of it. 3 weeks later the hump grew bigger.”
‘I don’t use makeup because I’m ashamed of my disease but because I feel entitled to not be defined by it.’
“It’s a way to distract myself and hide the raw emotions of my mental, emotional, and physical struggles. The power of makeup has been a nice reminder that through my suffering, the true me is still in there.”
