“When you see me in a handicapped parking spot, you might glare. You may even be like those who have said something rude or left a nasty note on my windshield. I sport titanium rods and screws that go from the base of my head to my mid-back. You wouldn’t know by looking at me I have a terminal illness.”
‘When you see me in a handicapped parking spot, you roll your eyes. My husband explains, ‘She doesn’t get better from this. She ultimately dies from it.’: Woman with multiple chronic illnesses urges ‘not all disabilities are visible’
‘So she’ll always be sick?’ I leave the office with an answer but no cure. ‘I’m not dying. I’m just 16 and past my prime.’: Chronic illness warrior battles lupus and fibromyalgia
“’Maybe if I drank bleach,’ I think. I feel so dirty, tired and stiff. ‘Maybe if I turned inside-out and scrubbed my veins out with soap.’ Surely the disease would be eradicated. I’m supposed to find out today. I tap my foot. ‘Remember to breathe, you have to breathe, just breathe.’ Dr. Box settles into his rolling chair. ‘So she’ll always be sick?’ ‘Yes, but we caught it early.’ Yesterday, I dropped my hairbrush. I couldn’t finish. My hair is still knotted in the back. Last week, I passed out briefly, stepping out of the shower. And this was an improvement.”
‘What will you tell your kids? They look trashy.’ I’ll tell them what my tattoos mean to me.’: After lupus diagnosis, sexual assault survivor uses to tattoos to ‘help me reclaim myself’
“Unsolicited, I have been ‘advised’ on my body art. I’ve been asked, in horror, ‘What will you tell your kids?’ I’ll tell them what my tattoos mean to me, and when they’re older, they can get tattoos if they want them. ‘You’re inviting people to judge you.’ Actually no, I’m not. ‘Can you get a job with those?’ Firstly, none of your business. Secondly, yes. Then there are the people who find my tattoos TOO appealing. ‘Where ELSE are you inked?’ ‘So, you like pain, huh?’ ‘Wanna see MY tattoo?’ Seriously, be less sleazy.”
‘I was not a virgin. BUT I was in my own home. I took my rape and buried it. For 21 years.’: Teenager raped at her own party in high school says she was a ‘broken spirit,’ but learned to ‘survive, be strong’
“When I was 18, I threw a party at my house. I convinced my parents I was grown enough to stay home alone. Enter the sweaty keg in the living room that left a ring on the floor permanently. And the collection of teddy bears my mom kept in the living room drowned in the pool. It was devastating. That night I drank too much and let people I thought were friends, destroy parts of my childhood.”
‘I didn’t feel sick, I didn’t look sick. Yet, my body was attacking itself AND my baby.’: Woman’s ‘leg swelling’ dismissed as ‘old age’ at 33, later diagnosed with Lupus
“My family and I were on our way to a cruise vacation when my doctor called, asking me to come in. ‘I don’t think you should go on that vacation,’ he said. What the heck?! Oh no, I was going on vacation! Then, he gave me a quick and dirty update on my situation. I felt like I was in a dream state. I started to cry. I pride myself on being very strong and independent, but in that moment, I was TERRIFIED. I wasn’t sure I’d be around to see my children grow up.”
‘I think I made a mistake. A mistake in having him at all,’ I texted. I wished to GOD I could go back to pre-child life. ‘You are not meant to be a mother,’ I told myself.’ Woman’s severe struggle with postpartum depression
“I vividly remember hearing my baby cry for the first time and feeling… nothing. ‘Mom he looks just like you!,’ the doctor said. I tried to squeeze out a tear because that’s what new moms do, right? I tried to feel happiness. It wasn’t there.”
‘I love when you are healthy, and can play with me,’ my son said. That CRUSHED me. I was forced to observe my son from a distance, watching his life from afar. I couldn’t join in.’
“When my husband and I decided to have a second child, crap hit the fan. I felt like a failure, yet nothing was ‘officially’ wrong with me. I would overdo it just to show him I was a good mom. I would regret it later.”
‘I was out at a restaurant. ‘I’m not feeling well,’ I said. I knew something was wrong. Shaking, I excused myself and drove straight home. When I got back, my world crumbled around me.’
“I crawled to the bathroom. I couldn’t stand up without blacking out. I was paralyzed. I was supposed to be getting ready to go off to college with friends and I suddenly found myself unable to get out of bed. The wheelchair made others roll their eyes. ‘You don’t need that,’ they said. ‘Faker.’
‘I can tell by the tears in your eyes no one has believed you, have they?,’ he asked. ‘No, they haven’t.’ He then replied, ‘Well I believe you.’ I had felt like a crazy person.’
“This man was 11 years older than me. We ended up getting married. I felt pressured into this marriage, as if I had no other option. So I did. He had dark secrets. I remember screaming for help. But no one would.”
‘I’m ok to keep repeating until I pass.’ This is my adopted brother. His mother died of lupus; his father has a new family now. He’d need to repeat 6th grade.’
“People question ‘why was he allowed to graduate with that kind of average?’ or ‘he is barely able to read and write, how did he pass?’ The thing is, he tried and kept trying. We never scolded him, never made him feel like he did not know anything. We never made him feel bad about himself.”
