Maffucci Syndrome

‘I wouldn’t step out of the house in shorts or skirts because of the scars on my legs. ‘Why me?’ I was tired of crying out to God.’: Woman with rare Ollier’s Disease disorder and Scoliosis finds self acceptance, ‘I was handpicked’

“I became so caught up in trying to appear ‘normal’ I began to lose myself. At the end of the day, I felt like I was living a double life. I would often wear long sleeve shirts or jackets to hide my left arm. I wanted people to look beyond the scars and differences.”

 Share  Tweet