malnutrition

‘Minutes after being born the doctors noticed my skin peeling from just being wrapped in the typical blanket they use with newborns’. Woman describes the pain of living with Recessive Dystrophic Epidermolysis Bullosa

“There’s often the misconception my illness is not a big deal and it’s ‘just a skin condition.’ If my illness was as minor as people tend to believe I wouldn’t have lost the ability to walk over the years, or my hands wouldn’t be webbing from years of scarring and friction.”

‘She was severely malnourished. ‘We don’t expect her to live very long in the orphanage.’ I was in it for the long haul.’: Woman adopts orphan into her forever family, ‘She became mine and I became hers’

“I knew the dangers of short-term volunteers going into orphanages and getting attached. ‘She won’t let anyone play with her. She’s very stubborn.’ But I was stubborn too. Our doctor took off his glasses and looked me in the eyes. ‘Have you considered pursuing custody?’ I felt the weight of his words. I was young. Really young.”

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