“For as long as I can remember, I’ve been nauseous. I had lost 40 pounds. I started to find that the harder I worked, the more stamina I lost. The weaker I got. My body would physically swell. Then the horribly loud and embarrassing belching developed. ‘I really don’t think you need these tests. I believe your symptoms are psychosomatic.’ The doctors all told me it was anxiety. It was ‘in my head’ and I needed to ‘push past it and challenge myself.’ I would remain misdiagnosed, dismissed, and passed off, for another full year.”
‘This is clearly a case of anorexia. You’re a teenage ballerina refusing food.’: Woman with MALS is misdiagnosed for 20 years, ‘I was now convinced. They were doctors. They had to be right, right?’
‘With tears welling up in my eyes, I was only able to mutter one question: ‘But why does it hurt so much when I eat?’ Nobody answered me.’
“For what felt like an eternity, I laid quietly in my hospital bed, still surrounded by these strangers who were supposed to be some of the best doctors in the country, until a young-looking doctor standing across from the psychologist broke the silence, ‘Your head is messing with you, there is nothing physically wrong.'”
