MALS awareness

‘This is clearly a case of anorexia. You’re a teenage ballerina refusing food.’: Woman with MALS is misdiagnosed for 20 years, ‘I was now convinced. They were doctors. They had to be right, right?’

“For as long as I can remember, I’ve been nauseous. I had lost 40 pounds. I started to find that the harder I worked, the more stamina I lost. The weaker I got. My body would physically swell. Then the horribly loud and embarrassing belching developed. ‘I really don’t think you need these tests. I believe your symptoms are psychosomatic.’ The doctors all told me it was anxiety. It was ‘in my head’ and I needed to ‘push past it and challenge myself.’ I would remain misdiagnosed, dismissed, and passed off, for another full year.”

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