Mast Cell Activation Syndrome

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

‘I crumpled to the ground. ‘She’s a crybaby,’ the doctor said. ‘There’s nothing wrong. She’s wasting our time, take her home.’ I was misdiagnosed as a hysterical teen girl.’: Chronic illness warrior runs for first time in 29 years

“Flesh peeled away from my exposed wound and floated like confetti all around me as I sat in excruciating pain. I will never forget the smell. ‘You outta play the lottery, kid! You hit the proverbial jackpot, not once, but twice. What are the odds!’ It was spreading to my ‘good’ leg. There was no more Lara left, only pain. I was told it was all in my head.”

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