micro preemie

‘I said to my husband, ‘I think something is wrong with the baby.’ There was fluid in the back of his neck. ‘We need to admit you. Today.’: Mom says ‘Down syndrome is the best thing to ever happen to our family’

“‘It could be something, it could be nothing.’ My blood pressure spiked dangerously high. The doctor said, ‘We need to admit you. Today.’ I was hooked to an IV in a massive, darkened birthing room in the middle of the night. When it came time for his arrival, there were 20 people in the room. All I remember saying was, ‘Oh, he’s so cute,’ and then he was gone.”

‘Her intestines were twisting. ‘If you don’t do it tonight, you could die. And there’s no guarantee she’ll live.’: Mom births ‘miracle’ baby with Short Bowel Syndrome, ‘She was meant to survive’

“She looked terrible. Her usually pink skin was a greyish-blue. Her belly was huge and so stretched out, you could see every vein. She wasn’t moving on the operating table. With mascara-stained tears streaming down my cheek, I held on to her a little tighter.”

‘She denied me pain medication. ‘Let’s get it over with. Your twins will be born and die.’ I was banned from seeing them.’: Mom births twin preemies, ‘I KNEW they were worth everything’

“The nurse wouldn’t let me hear their heartbeats. ‘It’s a waste of time. They will die.’ I couldn’t get up to pee or else Baby A would come out a little more. I felt so defeated. A new doctor walked in. ‘We’re going to another hospital and I’m coming with you!’ We were gone in seconds.”

‘Why weren’t we told this sooner? Obviously they suspected brain bleeds. Why didn’t we know?’: Newborn suffers brain bleeds in-utero, defies all odds to survive, ‘he’s leaving a trail of middle fingers behind him for the naysayers’

“My husband arrived just seconds before the doctor said, ‘He is out!’ I was certain he had died. I couldn’t stop shaking while they stitched me up. But he was perfect, with a surprising amount of thick, dark hair. ‘There’s a high likelihood he’ll never walk or talk.’ They asked if we wanted to stop life-saving measures. We stood our ground. He’d be our ‘wayfinder.’ We trusted he’d tell us in his own way if things became too much, and it was time to stop fighting.”

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