Microcephaly

‘Our baby is going to die.’ Harper spiked a 106-degree fever. ‘She has a 1% chance of making it to her first birthday.’: Mom births miracle baby with Trisomy 18

“The doctor said, ‘These kind of babies do not make it full term and if the baby is born alive, they only live a few days…a week at most.’ Weeks later we were told, ‘We can’t find any markers.’ They couldn’t see any holes in her heart and all of her other signs had disappeared. She looked perfect. My husband and I were lost and confused.”

‘He was born looking like he’d been in a boxing match. His face was bruised, but no one seemed very concerned about it.’: Baby is born with microcephaly, ‘I truly see Grayson as the blessing he is’

“They have been unable to find a reason why this happened. I didn’t go out of the country while pregnant, I wasn’t exposed to Zika. He didn’t have a stroke in utero, and there is no gene to blame. We had no idea there was anything wrong before he was born. His whole life has been an emotional whirlwind. I wouldn’t have chosen this for him or for us, but I wouldn’t change it either.”

‘Be careful not to startle him with sudden sounds.’ ‘A loud sound could kill our boy?!’ We were terrified.’: Baby boy with extremely rare LQT Syndrome, Microcephaly, Deafness defies all odds

“While rocking Azariah to sleep for his nap, he went stiff in my arms. I turned the light on and things changed drastically. He started to convulse and foam at the mouth. I ran downstairs and called 911. Two minutes went by and he was turning blue. I lay him down and gave him 3 breaths. ‘How in the world did this happen to OUR son, why OUR son?’ No one else in the world was known to have the same genetic deletions.”

‘My husband was fuming. I was BORN to be her mom. She is here to prove everyone wrong.’: Daughter diagnosed with ‘extremely rare condition’ Lissencephaly, family ‘cheering for her every step of the way’

“In the coldest bedside manner alive, the doctor said, ‘There is no cure. If she lives, she’ll stop mentally developing at 2 months old. Here’s some paperwork. Any questions?’ I stared at him, my body slowly over heating. I told my husband to get me out of there. I looked up at the sky and thought, ‘Well, here we go.’”

‘Can you do the session tomorrow? We don’t have much time.’ I couldn’t hold back my tears.’: Photographer captures ‘bittersweet’ moments one day before baby passes from Microcephaly

“The next day, I showed up for the photo shoot. As soon as his mom brought him in, I was immediately teary-eyed. But they weren’t tears of pity, it was genuinely pure joy. He was the cutest little fighter I’d ever seen. See, baby Aiden was supposed to be stillborn, but he came out fighting. I cried, prayed, yelled, and cried some more the entire 45-minute drive home. I woke up the next morning to a message that he died. I am a wreck right now.”

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