Microcephaly

‘I’m having a hard time finding the baby’s head,’ the doctor said. ‘Were you bit by a mosquito during pregnancy?’: Mom births miracle baby with microcephaly, ‘He brings us endless joy!’

“I went for my routine check-up with my OB. The vibe of the room felt off. My doctor asked, ‘Have you been out of the country while pregnant?’ So many questions went through my head all at once. Is my baby alive? Is he okay? How’s his head? How many fingers and toes does he have? I was already in love with him, but so scared. And then I felt it. ‘This baby isn’t going anywhere.'”

‘We got THE CALL. ‘Would you be willing to accept a 3-month-old baby with serious medical needs?’ Our girl had endured more in those first 3 months than most do in a lifetime.’

“The thought of leaving her at school left me breathless. Would her teacher know what she needed? What if she was sad? Would she be scared? Made fun of by other kids for the ‘funny way’ she spoke? While our love and commitment to her never wavered for a second, it was earth shattering to hear.”

‘I think Evely is blind,’ my husband said. In my dreams, she had big, brown eyes. Turns out, she had NO EYES.’: Mom gives birth to baby with Anophthalmia, claims ‘my child who is blind is teaching me to see’

“I can still hear the words, ‘Your baby doesn’t have eyes’ clear as day. What do you mean she doesn’t have eyes?! I know people are born blind, but to actually not have eyes seemed impossible to wrap my brain around. I reacted like a typical mother would and blamed myself. Hell, I still do some days!”

‘My husband was fuming. I was BORN to be her mom. She is here to prove everyone wrong.’: Daughter diagnosed with ‘extremely rare condition’ Lissencephaly, family ‘cheering for her every step of the way’

“In the coldest bedside manner alive, the doctor said, ‘There is no cure. If she lives, she’ll stop mentally developing at 2 months old. Here’s some paperwork. Any questions?’ I stared at him, my body slowly over heating. I told my husband to get me out of there. I looked up at the sky and thought, ‘Well, here we go.’”

‘Can you do the session tomorrow? We don’t have much time.’ I couldn’t hold back my tears.’: Photographer captures ‘bittersweet’ moments one day before baby passes from Microcephaly

“The next day, I showed up for the photo shoot. As soon as his mom brought him in, I was immediately teary-eyed. But they weren’t tears of pity, it was genuinely pure joy. He was the cutest little fighter I’d ever seen. See, baby Aiden was supposed to be stillborn, but he came out fighting. I cried, prayed, yelled, and cried some more the entire 45-minute drive home. I woke up the next morning to a message that he died. I am a wreck right now.”

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