misdiagnosed

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

‘You’re imagining the sensation.’ My right hip snagged. My leg buckled beneath me. Pain shot into my thigh like electricity.’: Woman finally diagnosed with Ehlers-Danlos Syndrome, ‘They didn’t believe my pain’

“My doctor asked, ‘Are you having substance abuse issues?’ I was taken aback. I told her no. I was very hesitant to take any medications, much less for pain. ‘Leave a urine sample on the way out.’ She ran a full drug screen without telling me. It came back clean, but it didn’t matter. She didn’t believe me. She didn’t believe my pain. I was heartbroken.”

‘Ma’am, have a seat.’ I wanted to scream, ‘Look at the scar down my chest, I’m not making this up!’ but it was too late. They didn’t believe me.’: Woman finally diagnosed with invisible illness Myasthenia Gravis after 6-year battle  

“I was written off as hormonal. My husband frantically demanded I be intubated. He kept screaming, ‘The oxygen levels don’t matter. She’s in a Myasthenic Crisis!’ I tried to take a breath. It was too late. All my muscles started twitching. I was flopping around on the hospital gurney uncontrollably. Suffocating. I was dying and no one was listening to my husband’s desperate pleas. I heard Code Blue called over the intercom and faded away. I didn’t wake for 2 weeks.”

‘Maybe it’s time to change your major.’ I couldn’t turn to my parents. I’m happy I didn’t listen to that advice.’: Daughter of Mexican immigrants becomes first generation graduate, inspired by brother’s illness

“During our phone conversation I remember him telling me, ‘Mija, I am so proud of you. I knew you would get accepted!’ It’s moments like these when I am happy to share with my parents because I know they are not only my accomplishments, but theirs as well.”

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