misdiagnosed

‘Every morning I trudged, syringe in hand, to get stabbed in the abdomen on an exam table while my classmates grabbed Starbucks. I began silently screaming, ‘Why me?’: 19-year old diagnosed with IBD, ulcerative colitis advocates for change

“I was warned about the freshman year dorm life and told where to go for mental health counseling if exams became too stressful. I was not told what to do, how to continue, or who to turn to if I was suddenly forever ill.”

‘It shouldn’t hurt that bad.’ I was weak, lazy. A complainer. Only 15, doctors had already given up on me.’: Woman diagnosed with Lupus after years of misdiagnoses urges ‘find someone who will listen’

“I could not find my words. I slurred my speech and often got lost driving to places I’d driven to a thousand times. My doctor finally explained pregnancy posed ‘too much of a risk to my life.’ But come December, I saw two little lines on a stick. This little one was determined.”

‘He has 4 to 6 months left to live.’ Hospice prepared us for the worst, but our faith was bigger than that.’: Woman shares powerful love story through husband’s stage 4 cancer battle

“The day before getting discharged, I thought it was the strangest thing Devan requested for my mom to get him a ring pop. ‘Will you take a walk with me?’ As we are walked through the garden outside the hospital, I see from the corner of my eye a piece of paper. Instantly, my heart started pounding. Tears began pouring down my face.”

‘WHAT’S GOING ON?’ The nurse said, ‘Everyone is freaking out! His blood alcohol level is so high!’ He’d only consumed a piece of chocolate cake.’: Widow raises awareness about Auto-Brewery Syndrome after husband’s long road to diagnosis

“Donato was pulled over and arrested for a DUI. I asked the officer, ‘How can someone who WASN’T drinking have a breath alcohol level 3 times the legal limit?’ We were confused; doctors were confused. Even in the greatest city in the world, no one could figure out what was wrong with him.”

‘Reese was snotty, stuffy, and not her usual self. The following day, we noticed a button battery missing in our home.’: Bereaved mom starts non-profit after losing daughter to ingested battery

“The reality of Reese being gone crashed over me when it was time to call my husband. His words and voice are etched in my mind forever: ‘No, no, no. It can’t be.’ And then came the wailing. I held her, one last time, praying it wasn’t real. If it was possible, I would have held on forever.”

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

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