misdiagnosis

Special needs mom shares photos of her son with severe epilepsy, one smiling and carefree and one looking sad in the hospital

‘Your son has the worst epilepsy I’ve ever seen.’ It’s insane to have doctors ask how to treat your child.’: Mom shares son’s journey with Epilepsy through misdiagnoses, mistreatment to 3 years seizure free

“As time passed, I saw major changes in my once happy, carefree child. He was withdrawn and started to not like playing with his siblings or classmates. The doctor told me it was ‘just a side effect.’ My mom gut told me something wasn’t right.”

‘The doctor said, ‘It’s just teenage girl stuff.’ I was living with everyday pain as if it were normal, forced to accept feeling this way forever.’: Young woman shares journey to Ulcerative Colitis diagnosis, ‘My life is just beginning’

“I was 21, almost done with my senior year of college. These were supposed to be the best years of my life, yet every day I felt sick and exhausted and no doctor could tell me why. I was told it was ‘all in my head.’ I lost friends because no one could understand. Soon, I was withdrawing from my semester from a hospital bed.”

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