MPS awareness day

‘He went into a silent seizure. We heard ‘code blue’ over the loudspeakers. ‘If it’s his time, let him go.’ My mama heart just knew.’: Mom loses son to fatal Sanfilippo syndrome, ‘God entrusted me with the most beautiful human’

“We knew the symptoms would get worse. That one day, the smile that made my heart flutter would lose its spark. We were on ‘borrowed time.’ The parademics tried to resuscitate him. His heart stopped beating 3 times. Until his very last breath, Lucas made sure we had the time we all needed to know he was at peace.”

For our best love stories, subscribe to our free email newsletter: