muscle disorder

‘Kerri, get a grip!’ the doctor said. I could only take Tylenol after surgery. I was sure I was going to die.’: Woman with arthrogryposis muscle disorder says ‘nothing is impossible with a fighter’s soul’

“I looked like a pretzel, but my mom wasn’t able to hold me for hours. Doctors started discussing ‘options.’ They told her I wouldn’t be able to do much. They said I would be better off if my parents decided to sign me over to the state. My mom immediately asked to be transferred.”

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