Myasthenia Gravis

‘Ma’am, have a seat.’ I wanted to scream, ‘Look at the scar down my chest, I’m not making this up!’ but it was too late. They didn’t believe me.’: Woman finally diagnosed with invisible illness Myasthenia Gravis after 6-year battle  

“I was written off as hormonal. My husband frantically demanded I be intubated. He kept screaming, ‘The oxygen levels don’t matter. She’s in a Myasthenic Crisis!’ I tried to take a breath. It was too late. All my muscles started twitching. I was flopping around on the hospital gurney uncontrollably. Suffocating. I was dying and no one was listening to my husband’s desperate pleas. I heard Code Blue called over the intercom and faded away. I didn’t wake for 2 weeks.”

‘My sister arrived to find me trying to clean up another bladder accident. She pulled out a pack of Depends. ‘Well I guess you WILL be needing these!’ I reluctantly took the pack from her, and put on the adult diaper.’

“I’m scared of finding out what’s really wrong with me; I’m scared of how fast my health is declining; I’m scared I won’t be able to be the super mom and wife I have been; I’m scared because I’m not able to work; I’m just scared!”

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