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‘Baine woke up crying about stomach pain. He was making whining noises, his eyes not tracking me. I hurried as fast as I could to the car.’: Mom raises awareness about OTC Deficiency in honor of late son, ‘He was the answer to other prayers’

“I made him toast and got him a coke. He seemed better. We talked for a minute and he fell back asleep. His eyes were no longer tracking me. I hurried as fast as I could to the car, carrying Baine in my arms. Within 5 minutes, he was losing consciousness. He was making horrible noises in his seat. He was scared, but he couldn’t communicate. His brain was being slowly poisoned.”

‘It’s been 2 weeks. When will your belly go down?’ ‘When will you stop being moody?’ She is not herself. She probably never will be.’: Mom urges us to ‘rally behind’ women post-labor

“Spouses, ask how she’s feeling. Her entire body just stretched and morphed to share it with another human being. Do you know how absolutely bonkers a woman’s hormones are during pregnancy and after delivery? Becoming a mom for the 1st, 2nd, or even 5th time changes you, forever. Clap for new moms. Your words matter. We need them to be positive.”

‘My daughter started bawling and wouldn’t let go of me. ‘All you do is sleep!’ My friends would say, ‘You’re a single mom. It’s normal to be tired.’ I knew something was wrong.’

‘It was happening at home, at work, at the grocery store. When I got home, I would give my daughter a snack and immediately go to sleep. Every time I got up to use the restroom, my heart rate would shoot up. I started teaching my 8-year-old how to call 911 if I couldn’t make it to the phone.”

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