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‘I don’t want to be here! People get bad news in these rooms!’ My son’s leg was rapidly turning black. ‘Your son is the sickest kid in this hospital right now.’ Mom shocked by horrific diagnosis after being told it was a ‘regular bug’

“I don’t remember the drive there. The social worker walked us back past a room with 15 doctors spilling out into the hallway. ‘Jonathin was fine an hour ago. There’s no way he’s dying!’ This is the kind of story you see on the news and then you go on with your life. To say I was in shock is an understatement.”

‘What did I do wrong to cause this sweet blonde-haired, blue-eyed boy to suffer like this?’ He woke up so smiley that morning. My husband and I were silent. ‘It’s time,’ the team said. The doors shut behind him.’

“Ten minutes went by…then 30 …then 45. I was in a total panic. Instead of the screen showing he was waking up from anesthesia, it said he was still in the O.R. There was a look of concern in his surgeon’s eyes. ‘For some reason, half of his skull expanded faster than the other.'”

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