Necrotizing Enterocolitis

‘Her intestines were twisting. ‘If you don’t do it tonight, you could die. And there’s no guarantee she’ll live.’: Mom births ‘miracle’ baby with Short Bowel Syndrome, ‘She was meant to survive’

“She looked terrible. Her usually pink skin was a greyish-blue. Her belly was huge and so stretched out, you could see every vein. She wasn’t moving on the operating table. With mascara-stained tears streaming down my cheek, I held on to her a little tighter.”

‘A portion of her chromosome is missing.’ We had to prick her on the foot to get her conscious again.’: Mom of special needs twins, one with a chromosomal deficit, one autistic, says ‘I never imagined my journey as a mom would look this way’

“A few weeks later, we received the results. ‘Julius has a diagnosis of autism.’ I went from raising one special needs child to two. I learned quickly I would not be able to have typical ‘mom’ conversations with other new moms. I realized most things parents took for granted were not part of my journey.”

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