neuroblastoma

‘I slid onto the floor as I heard the doctor speak. ‘Why do I have to have cancer again, Mama?’ Time seemed to freeze.’: Girl battles neuroblastoma, ‘Izzy continued to fight and the rest of the world just kept going’

“The call came just like it does in the movies. I sat in a rocking chair in her room and slid onto the floor as I heard the doctor speak. I stared at this little play clock. I can still see it so vividly — its tiny yellow hands stood still on its pink face. Time seemed to freeze in those moments. I would remember it as the day our life stopped.”

‘We need to make her soup so she feels better!’ I had to explain to my 5-year-old his sister was going to heaven.’: Mom loses daughter to Neuroblastoma, ‘we will never forget our brave, beautiful warrior’

“I watched her breathe so slowly. ‘It’s okay to go now. You won’t be in pain anymore.’ At 9:14 p.m. she took her last breath. Her brothers cuddled her one last time and said their final goodbyes. There’s something about seeing your 5-year-old carrying a tiny little casket that will break your heart and make you so proud all at the same time. He was always holding his little sister, even in death.”

‘Her stomach looks too bloated.’ Her pediatrician agreed. ‘It does feel hard.’ I got scared.’: Mom witnesses ‘miracle’ after newborn’s cancerous tumor shrinks, says fighting neuroblastoma teaches you ‘you’re never guaranteed another day’

“I noticed her stomach seemed very bloated, especially on one side. I asked family members to take a look – no one was concerned. The oncologist asked lots of questions, but one stopped us in our tracks. ‘Has anyone in your families had cancer?’ I looked at my husband, and he looked at me. In that moment, we both knew what she was about to say. ‘I’m so sorry.’ She had tears in her eyes.”

‘My son, this chubby baby, is currently on chemo. He has cancer. He can’t be in this waiting room.’: Mom has ‘immense guilt’ for every mother experiencing loss, childhood cancer treatments now that son is healthier

“‘Enjoy it,’ a man said, looking at my happy son. ‘I’m enjoying this more than you know.’ Just 6 months ago, I walked into that waiting room with my son closely held to my chest. His bright blue eyes peeked up at me – almost completely covered by a paper face mask. I’ll never forget placing Jameson on the table. ‘Does his belly look too big?’ I asked, concerned. Our perfect, happy, healthy baby boy had a belly full of tumors. Cancerous tumors.”

‘He had a really rough go. Joe is our youngest child. Neuroblastoma is a really crappy cancer to have.’: Mom says her son is ‘doing beautifully’ after battling stage 4 neuroblastoma

“‘I’m going to play soccer and baseball in the fall,’ little Joe said, now in post-treatment. I still believed childhood cancer was rare. I even believed the kids who did get cancer would be fine, assuming they were treated at the best hospitals and didn’t have any unusual complications. I didn’t believe kids like mine could get cancer. It wasn’t until I was officially a ‘cancer mom,’ that I would understand.”

‘I went home after my son’s transplant, only to receive an angry letter about the ‘eyesore’ exterior of my home.’: Woman’s son diagnosed with Stage 4 cancer, community unites to clean her home in wake of insensitive complaint

“My son kept holding his right side and screaming. They told me he was ‘just constipated’. ‘Constipation shouldn’t be making him scream.’ They thought I was some crazy helicopter mom. The doctor’s response? ‘Well, if it was real pain, you holding and consoling him wouldn’t be making him feel better like it is now.’ Boy, was she wrong. I could feel in my spirit something was wrong with my baby boy.”

‘My wife received this horrible message: ‘I was going to donate to her fund, but I found out her parents are lesbian. Sorry.’: LGBT moms ‘disgusted’ by rude comment after daughter’s Stage 4 Neuroblastoma diagnosis

“The X-ray showed a huge mass in her abdomen. We were ready to take on this fight for our baby girl. We went through four cycles of chemo and had our scares, but she came through! The day of her tumor removal came. ‘She shouldn’t have two mommies.’ We were disgusted.”

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