neuroblastoma

‘We need to make her soup so she feels better!’ I had to explain to my 5-year-old his sister was going to heaven.’: Mom loses daughter to Neuroblastoma, ‘we will never forget our brave, beautiful warrior’

“I watched her breathe so slowly. ‘It’s okay to go now. You won’t be in pain anymore.’ At 9:14 p.m. she took her last breath. Her brothers cuddled her one last time and said their final goodbyes. There’s something about seeing your 5-year-old carrying a tiny little casket that will break your heart and make you so proud all at the same time. He was always holding his little sister, even in death.”

‘Her stomach looks too bloated.’ Her pediatrician agreed. ‘It does feel hard.’ I got scared.’: Mom witnesses ‘miracle’ after newborn’s cancerous tumor shrinks, says fighting neuroblastoma teaches you ‘you’re never guaranteed another day’

“I noticed her stomach seemed very bloated, especially on one side. I asked family members to take a look – no one was concerned. The oncologist asked lots of questions, but one stopped us in our tracks. ‘Has anyone in your families had cancer?’ I looked at my husband, and he looked at me. In that moment, we both knew what she was about to say. ‘I’m so sorry.’ She had tears in her eyes.”

‘My son, this chubby baby, is currently on chemo. He has cancer. He can’t be in this waiting room.’: Mom has ‘immense guilt’ for every mother experiencing loss, childhood cancer treatments now that son is healthier

“‘Enjoy it,’ a man said, looking at my happy son. ‘I’m enjoying this more than you know.’ Just 6 months ago, I walked into that waiting room with my son closely held to my chest. His bright blue eyes peeked up at me – almost completely covered by a paper face mask. I’ll never forget placing Jameson on the table. ‘Does his belly look too big?’ I asked, concerned. Our perfect, happy, healthy baby boy had a belly full of tumors. Cancerous tumors.”

‘He had a really rough go. Joe is our youngest child. Neuroblastoma is a really crappy cancer to have.’: Mom says her son is ‘doing beautifully’ after battling stage 4 neuroblastoma

“‘I’m going to play soccer and baseball in the fall,’ little Joe said, now in post-treatment. I still believed childhood cancer was rare. I even believed the kids who did get cancer would be fine, assuming they were treated at the best hospitals and didn’t have any unusual complications. I didn’t believe kids like mine could get cancer. It wasn’t until I was officially a ‘cancer mom,’ that I would understand.”

‘I went home after my son’s transplant, only to receive an angry letter about the ‘eyesore’ exterior of my home.’: Woman’s son diagnosed with Stage 4 cancer, community unites to clean her home in wake of insensitive complaint

“My son kept holding his right side and screaming. They told me he was ‘just constipated’. ‘Constipation shouldn’t be making him scream.’ They thought I was some crazy helicopter mom. The doctor’s response? ‘Well, if it was real pain, you holding and consoling him wouldn’t be making him feel better like it is now.’ Boy, was she wrong. I could feel in my spirit something was wrong with my baby boy.”

‘I was going to donate to her fund, but I found out her parents are lesbian. Sorry.’ My wife received this horrible message. We were so hurt.’: 2 moms ‘disgusted’ by rude comment after daughter’s Stage 4 Neuroblastoma diagnosis

“We got a 3D ultrasound to find out the sex. It’s a GIRL! I bought hair bows and tutus. We were beyond excited. She was born perfect and healthy. No one knew she was hiding a secret illness. After realizing our sick child has two mommies, she couldn’t donate.”

‘Does it look too big?’ Our perfect, happy, healthy baby boy had a belly full of tumors. Cancerous tumors.’: Mom’s newborn diagnosed with Neuroblastoma, says ‘every little moment’ with loved ones is a ‘reason to celebrate’

“When our pediatrician comes back in, I see fear on her face. I feel the air leaving my lungs, my chest feels so heavy. She tells me his liver and spleen are enlarged, so enlarged the radiologist who read his X-ray asked, ‘How sick is this baby?!’ He’s not sick at all! He’s smiling and laughing, he’s perfect. I rush toward the elevator, a literal sobbing mess. How did I not know this? I thought I knew shock and devastation. I had no idea.”

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