NICU mom

‘I was suddenly watching her monitor flat-line. Countless nurses rushed to save her. It happened 20 times that day.’: Mother shares traumatic process diagnosing daughter with Adrenal Insufficiency

“I never planned to be a medical expert, or to have to inject my daughter to save her life. Ten times I’ve swallowed back tears while holding my limp child in my arms; remembering each step to prepare the syringe; taking a deep breath as I jab it into her thigh; praying she will jolt awake, open her eyes, and come back to life.”

‘I never knew this picture existed. The fateful day we became parents. My heart races each time I look it.’: Triplet mom shares harrowing photo before losing 2 babies, ‘I see beauty. And a miracle unfolding’

“We don’t know who was in this photo, their tiny features are far too difficult to differentiate at less than an hour old. Just moments after my husband took this picture, our two babies were rushed up to the NICU. We never had that picture-perfect moment in the delivery room, the one where a smiling family shows off their precious newborn. Instead, this is our photo.”

‘You must be so relieved. I bet you can’t wait to take her to Target.’ This medical hell would follow us home for years to come.’: Mother shares reality of daughter’s tracheostomy post NICU, ‘If I was going to do this, I’d become the best damn trach parent ever’

“If I was going to do this, I’d become the best damn trach parent that ever lived. The reality is, while our NICU chapter is over, this is far from normal. I can’t take Lily to the store, or anywhere, alone. My husband and I haven’t been alone in 4 months. One of us needs to be awake around the clock to care for her. There is no longer privacy in our home as our ‘special guests’ come in and out all day and night.”

‘The ultrasound tech lubed my belly. ‘OMG. There are SO MANY!’ My heart dropped. ‘So many what?!’: Mom births triplets after battling infertility, ‘It’s hard, but in the end it’s all worth it!’

“The doctor replied, ‘So many babies! There is 1, there are 2, there are 3, and there might be a 4th…’ Shocked is an understatement. I sat there laughing and full of adrenaline, while my husband sat in the corner of the room with his hands covering his face. We were dumbfounded. I went emotionally numb. I couldn’t believe this was happening.”

‘I chose to wear headphones. I didn’t want to hear or see Lily, afraid she would die. I kept my eyes affixed on my husband.’: Parents who lost twin daughter navigate marriage through tragedy, ‘We weren’t remotely prepared for what lay ahead’

“My husband encouraged me to look at my 1-pound daughter. If Lily died, we agreed to sell all our belongings and move to a beach in Hawaii, disappearing until we felt strong enough to return – but Pat knew Lily was strong enough to survive. I had intense, terrifying thoughts. This is not what we anticipated when we took our vows, but we faced each day together. We’ve come so far from stupid teenagers breaking curfew for 5 more minutes together, but if they could look ahead, I know they’d be pretty damn proud of us, too.”

‘Something isn’t right.’ I looked into my husband’s eyes. As I slowly shifted our son’s head, I saw an enlarged cheek.’: Mom ‘never knew’ about newborn’s lymphatic malformation until birth, ‘We were numb’

“Immediately our midwife called in the doctor. Within 3 minutes of meeting our precious Oliver, he was taken off my chest and over to the incubator. I didn’t know how to feel. My midwife was still trying to get me to stop bleeding as I struggled to see my baby. There was no time to process, research or pray. Here he was, our firstborn. We had no idea how to be parents, but then to throw in a special needs child, we were numb.”

‘How the hell did I end up here?’ It took me months to say, ‘My child died.’ We hung her stocking. I’m finally ready.’: Mom celebrates stillborn during holidays for surviving twin to know ‘her sister’s spirit is with her for her lifetime’

“I can’t tell you how many times I’ve answered, ‘How are you?,’ with a forced, fake, ‘Hanging in there!’ just to make the conversation easier. We hung her Christmas stocking on the mantle this year. I am painfully aware that on Christmas morning, that stocking will hang empty as the others burst with gifts. ‘Why me? Why our family?’ But for now, we honor her absence. I am finally ready.”

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