NICU nurse

‘There’s something wrong with her!’ My mom looked at my triangular-shaped face.’: Woman with rare form of Dwarfism defies ‘grim’ life expectancy, ‘never gave up’

“My mom was pregnant with twins when doctors quickly realized I was growing a lot slower and smaller. Being a nurse, she knew diagnosis was grim. My dad got a call from my mom saying her water broke and he needed to get back to the hospital as fast as he could. Baby A, which was me, was ready to come out and see the world! Everyone else was not.”

‘Are you going to keep him?’ I sat in tears, softly rubbing my belly. ‘Please grow. Build arms.’ I was hoping there must be some mistake.’ Mom delivers baby with TAR Syndrome after miscarriages

“People would say how fast he’d grow and all he’d do. All those words felt like lies. They didn’t know about his arms. Then there were the people that did know, and that was worse. I couldn’t stand the pity. My son, my angel, was NOT ‘sad’. I cried daily and felt guilty for questioning if keeping him was the right thing to do.”

‘Who wants a single mom with a deformed monster?! NO ONE!’ Pregnant at 18, my abortion was the next day. A flip switched.’: Mom raises son with missing limbs despite abusive partner’s pressure to terminate pregnancy

“Pregnant at 18? Hard. Finding out your baby has no arms or legs? Earth shattering. I tried to distance myself from my baby, but I woke up screaming, holding my belly. I would give birth to a vegetable. As I laid there, it hit like a thousand ton of bricks. I screamed to my baby boy that I love him, and I just wanted to do what’s fair for him.”

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