NICU nurse

‘There’s something wrong with her!’ My mom looked at my triangular-shaped face.’: Woman with rare form of Dwarfism defies ‘grim’ life expectancy, ‘never gave up’

“My mom was pregnant with twins when doctors quickly realized I was growing a lot slower and smaller. Being a nurse, she knew diagnosis was grim. My dad got a call from my mom saying her water broke and he needed to get back to the hospital as fast as he could. Baby A, which was me, was ready to come out and see the world! Everyone else was not.”

‘I don’t see arms.’ The sonographer takes too long rubbing the wand over my belly. Everything goes silent.’: After ‘repeat miscarriages,’ mom births ‘miracle, rainbow baby’ with TAR Syndrome

“We told our family about Nicholas’ lack of arms. ‘Do you think you should keep him?’ That question BROKE my heart. Having to confront the fact others disagreed with me was as painful as my miscarriages. Was I sentencing him to a painful life? People who didn’t know would talk of all the things he’d accomplish. It all felt like lies.”

‘Oh, she’s so cute!’ HIS hair was so silky and beautiful that I let it be. ‘That’s so irresponsible,’ the parent responded.’: Boy grows hair to donate to kids in need, mom says his ‘heart, not hair’ is what matters most

“He loved his hair, so I let it grow. What mattered to me was his heart, not looks. ‘What are you doing in the boy’s bathroom?’ ‘What would you like, sweetheart?’ For every uncomfortable comment, Morgan stood up for himself. ‘I’m a boy growing my hair to donate to children with medical issues.’ He just wanted to help other families.”

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