NICU warrior

‘George was breached. I wasn’t allowed a c-section to save him. ‘If you leave this hospital, you’ll regret it.’ He was so close.’: Woman births miracle preemie despite all odds, ‘I’m so proud to be his mom!’

“I was allowed no monitors to check on my baby during labor. I didn’t have a clue whether or not he was still alive. I was left in the dark. At 23 weeks, I didn’t dare look as I pushed him out. He was put into a small plastic bag, intubated at my side. I told my family, ‘This is the end.’ We planned his final outfit, said goodbye. Just in the nick of time, he showed us he wasn’t going anywhere.”

‘I don’t want this life. I’m not cut out for this!’ I heard ‘I’m sorry’ on the other end. Adrenaline began, my face got hot. Then the tears started to roll.’: Boy with down syndrome diagnosed with acute lymphoblastic leukemia

“Oliver was on vacation with his dad when I got the call. ‘He stopped walking.’ Weeks pass. His lymph nodes are swollen. Something just wasn’t right. I remember telling my boss, ‘I have to leave!’ Before I could even get a response, I was gone. I’m worried the ER doctor missed something. The doctor is quiet. I can see in her eyes she is trying to stay calm for me, but something is there. I scream. Deep down, she knows something I don’t.”

‘You must be so relieved. I bet you can’t wait to take her to Target.’ This medical hell would follow us home for years to come.’: Mother shares reality of daughter’s tracheostomy post NICU, ‘If I was going to do this, I’d become the best damn trach parent ever’

“If I was going to do this, I’d become the best damn trach parent that ever lived. The reality is, while our NICU chapter is over, this is far from normal. I can’t take Lily to the store, or anywhere, alone. My husband and I haven’t been alone in 4 months. One of us needs to be awake around the clock to care for her. There is no longer privacy in our home as our ‘special guests’ come in and out all day and night.”

‘The tech lubed my belly. ‘OMG. There are SO MANY!’ My heart dropped. ‘So many what?!’: Mom births triplets after battling infertility, ‘It’s hard, but in the end it’s all worth it!’

“I struggled to eat because my belly always felt so full. Every day I assumed it would be the day we rush to the hospital, but days went by and somehow, I kept them in. When they pulled out the first baby, it felt like a 5 lb. weight was lifted off my lungs. ‘If you can get out of bed and into a wheelchair, you can go see the babies.’ Challenge accepted.”

‘I chose to wear headphones. I didn’t want to hear or see Lily, afraid she would die. I kept my eyes affixed on my husband.’: Parents who lost twin daughter navigate marriage through tragedy, ‘We weren’t remotely prepared for what lay ahead’

“My husband encouraged me to look at my 1-pound daughter. If Lily died, we agreed to sell all our belongings and move to a beach in Hawaii, disappearing until we felt strong enough to return – but Pat knew Lily was strong enough to survive. I had intense, terrifying thoughts. This is not what we anticipated when we took our vows, but we faced each day together. We’ve come so far from stupid teenagers breaking curfew for 5 more minutes together, but if they could look ahead, I know they’d be pretty damn proud of us, too.”

‘Something isn’t right.’ I looked into my husband’s eyes. As I slowly shifted our son’s head, I saw an enlarged cheek.’: Mom ‘never knew’ about newborn’s lymphatic malformation until birth, ‘We were numb’

“Immediately our midwife called in the doctor. Within 3 minutes of meeting our precious Oliver, he was taken off my chest and over to the incubator. I didn’t know how to feel. My midwife was still trying to get me to stop bleeding as I struggled to see my baby. There was no time to process, research or pray. Here he was, our firstborn. We had no idea how to be parents, but then to throw in a special needs child, we were numb.”

 Share  Tweet