OI

‘She was in her bouncer when I heard, ‘CRACK!’ A voice in my head said, ‘Take her, NOW.’ There was more to the story than I knew.’: Baby diagnosed with Brittle Bone Disease, ‘She’s our little fighter’

“It was a Friday afternoon when I got the call. Athena and I were picking out Build-A-Bears. ‘How was this missed?!’ At the ER, the doctor asked, ‘How did this happen? Who took care of her?’ He was checking to see if we had purposely abused her. ‘We need to verify if DHR needs to be involved.’ It broke my heart all over again. They checked for more bruising. I was terrified of losing her.”

‘We were given a pamphlet. Everything said ‘lethal’. My boy had other plans.’: Baby with Osteogenesis Imperfecta ‘makes his own rules,’ defies all medical odds

“I didn’t learn anything was wrong with my son until 2 weeks before I had him. It went from ‘something might be wrong with his foot’ to ‘he is completely incompatible with life’. We waited for the genetic results to come back knowing every hour could be his last. All I could think was, ‘This can’t be his story.’ He’s a warrior.”

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