“I could’ve lost my life. I think of the doctor who laughed at me. ‘You’re healthy!’ he’d say. I wanted to give up more times than I can count. But I NEVER wanted someone to walk in my shoes.”
‘What if they don’t believe me?’ The surgeons had NO answers. I was labeled a ‘hypochondriac.’: Ehlers-Danlos Syndrome warrior becomes advocate, ‘The frustration fueled a fire in me’
‘Our baby was inpatient, and our daughter was admitted for paralysis. She screamed in agony.’: Twin born with heart defect while daughter battles cancer, ‘My only option is to be strong’
“Nothing prepares you to see your baby in that state. Then, our girl needed a biopsy. The hospital was nice enough to let them share rooms.”
‘Are you sure about having this baby?’ He was as blue as a Smurf. I walked down the corridor, empty, without my baby.’: Mom shares son’s journey with congenital heart defect, ‘It made me who I am’
“I didn’t know what or how to feel. ‘I’m numb.’ The word ‘death’ was written under risk factors. Signing the consent form was the scariest thing I’d ever done. It was basically signing away your child to your worst fear.”
‘Babe, were you drugged?’ The entire right side of my body was limp. I opened my mouth but words wouldn’t come out.’: Stroke survivor details recovery journey, ‘I got a second chance at life’
“My head started spinning. The next thing I knew, I woke up lying on the cold bathroom floor. A team of nurses pulled out defibrillators. ‘Claire, can you hear me?’ It was excruciating. I couldn’t help but scream out.”
‘I’ll never forget sitting in a hospital room watching you fight for your life, wishing I could fast forward to today. Today wasn’t supposed to happen.’: Mom pens emotional open letter to son on his first day of Kindergarten
“You’ll ask me when you’re older I’m sure. Why not high school or college graduation for a dream? Because ALL dreams begin with a stepping stone and this is yours. Some dream of puddles but you; the ocean. God knows you’ve swam through several already. It’s independence, it’s normalcy, it’s ‘just being a kid.'”
‘I saw a 5-year-old being transferred to an institution. ‘We might not get him in time.’ He HAD to be ours.’: Couple adopts special-needs children, ‘Every heart needs a home’
“Our baby had his first open-heart surgery at 3 days old. The timing couldn’t have been worse for adopting someone else. We began the process shortly before heading back to the hospital. Every child deserves a chance.”
‘I felt sheer terror. ‘Are you scared off yet?’ I knew if I met him, I wouldn’t say no. This is what I signed up for.’: Single mom adopts medically complex baby with Down syndrome, ‘I knew he was mine’
“I thought he was going to die that day. I put my life on hold to be there for him every day and night. I knew he was mine.”
‘She may not survive surgery.’ For 9 days, her chest remained open. She wasn’t the baby I expected.’: Mom has photo shoot in ICU before preemie passes to ‘make each day beautiful’
“Her body was too small to close over her swollen heart. Piles of machinery overwhelmed her metal crib. I hesitantly brought a small box into the ICU. Inside was a blanket and matching hair bow. I was shocked by how stunning she looked.”
‘OF COURSE the doctor knows more than me.’ An alarm went off in my head. We didn’t want to hand her over.’: Mom advocates for baby with Down syndrome, ‘She taught me to use my voice’
“Our baby’s heels were full of cuts from blood draws. We were battling low blood sugar, jaundice, and feeding issues. We spent that week walking around like zombies. She had no idea what was coming, but we did.”
‘Your heart is abnormal.’ I sent emails for a month with no reply. I already fainted at work and threw up blood.’: Woman with congenital heart defect shares struggles, ‘Keep fighting, warriors’
“I was constantly having hot flashes. I ended up throwing up blood and fainted at work. ’Go to Urgent Care.’ They weren’t really sure what was causing my problems. I was constantly waiting in the doctor’s office to get bad news.”
