“Our baby had his first open-heart surgery at 3 days old. The timing couldn’t have been worse for adopting someone else. We began the process shortly before heading back to the hospital. Every child deserves a chance.”
‘I saw a 5-year-old being transferred to an institution. ‘We might not get him in time.’ He HAD to be ours.’: Couple adopts special-needs children, ‘Every heart needs a home’
‘I felt sheer terror. ‘Are you scared off yet?’ I knew if I met him, I wouldn’t say no. This is what I signed up for.’: Single mom adopts medically complex baby with Down syndrome, ‘I knew he was mine’
“I thought he was going to die that day. I put my life on hold to be there for him every day and night. I knew he was mine.”
‘The hospital staff told us multiple times, ‘There are more emergent cases and not enough space.’ I woke to the sound of chaos.’: Mom loses son to congenital heart defect, ‘He was as perfect as could be’
“Just as I handed him off to the nurse, he began to cry, and right before we watched them walk him back to the operating room, we locked eyes. I had no idea it would be the last time I would ever see those beautiful blue eyes again.”
‘She may not survive surgery.’ For 9 days, her chest remained open. She wasn’t the baby I expected.’: Mom has photo shoot in ICU before preemie passes to ‘make each day beautiful’
“Her body was too small to close over her swollen heart. Piles of machinery overwhelmed her metal crib. I hesitantly brought a small box into the ICU. Inside was a blanket and matching hair bow. I was shocked by how stunning she looked.”
‘OF COURSE the doctor knows more than me.’ An alarm went off in my head. We didn’t want to hand her over.’: Mom advocates for baby with Down syndrome, ‘She taught me to use my voice’
“Our baby’s heels were full of cuts from blood draws. We were battling low blood sugar, jaundice, and feeding issues. We spent that week walking around like zombies. She had no idea what was coming, but we did.”
‘Your heart is abnormal.’ I sent emails for a month with no reply. I already fainted at work and threw up blood.’: Woman with congenital heart defect shares struggles, ‘Keep fighting, warriors’
“I was constantly having hot flashes. I ended up throwing up blood and fainted at work. ’Go to Urgent Care.’ They weren’t really sure what was causing my problems. I was constantly waiting in the doctor’s office to get bad news.”
‘She’s missing a bone in her leg.’ We had an impossible decision to make. I kissed her little broken foot goodbye.’: Mom amputates infant daughter’s leg, ‘She’s our saving grace’
“The doctors hit us with a heavy blow. ‘She won’t be able to walk. Ever.’ We tried to memorize how she looked with two little legs.”
‘I cried all day, waiting for a call from our doctor. She needed to see us right away.’: Family discover 2 other children have complex heart issues after newborn’s complications
“I was secretly hoping for a girl, but the sonographer told us it was a boy. I looked at Austin, smiled, and said, ‘At least we make healthy boys.’ The sonographer’s reaction was a little startling. She said, ‘Well, wait…’ She couldn’t get a good view of his heart, but she didn’t know why.”
‘At 11-years-old, I coded on the table. ‘You’re on your second soul.’: Chronic pain warrior with Complex Regional Pain Syndrome suffers stroke, finds community, ‘It’s about being there for each other’
“My first stroke was at 11 weeks old. By the time I was 4, I had three open-heart surgeries. Once, I made a list of things I have tried over the years for my pain. It was three pages long. You name it, I’ve probably had it.”
‘She started with, ‘So the good news is…’ My heart sunk. When they took her away we were a mess.’: Baby with Down syndrome diagnosed with congenital heart failure, ‘She is a miracle’
“I sat in my car crying in the parking lot. ‘She’s going to need surgery.’ I mourned the loss of the child I thought I was carrying.”
