“‘I can’t celebrate, I can’t be happy!’ My dad told me, ‘Yes, you can. You’re going to enjoy these days with her.’ We relished in our sweet baby girl, just like my father told me. We soaked up EVERY milestone.”
‘God, PLEASE heal my child.’ Our future as parents seemed so unsure. We needed a MIRACLE. ‘Just keep pushing, baby.’: Mom to daughter fighting Ebstein’s Anomaly says ‘she’s our little light’
‘You’ll never be able to write or even wear a ring.’ I’d pull my sleeves over my hands. I wanted to be ‘normal.’: Limb difference advocate shares her journey, ‘Celebrate your differences’
“I was convinced I’d be judged based on my hands and feet. I made every effort to conceal my hands. I’d wear a cardigan to hide my scars. I wanted as little attention drawn to me as possible.”
‘You’re purposely starving your unborn child by not eating.’ My husband wasn’t allowed in the room for ultrasounds.’: Mom births baby with Down syndrome after hospital malpractice, ‘He is more loved because, not despite, his diagnosis’
“The pediatrician was super blunt. ‘No, you are mistaken. You’ve confused us with a different baby.’ Nobody noticed it on the million ultrasounds throughout the pregnancy. I watched my husband and 1-day-old baby taken away from me in an ambulance and all I could do was stare.”
‘My father had an operation. The tall, strong man was shaking uncontrollably. The tubes made him appear unhuman. But he was my dad, and I was drowning.’
“I got a phone call. It was late. I was advised to get on a plane. Dad would not make it through the night. While holding onto his hand, I tried to talk to him, but I could not. All the things I hadn’t said. All the things I hadn’t told him.”
