“I’d spent so long thinking no one would ever love me and then when I finally found the perfect, most precious man, I had to get a poo bag? I wanted to scream and cry and throw things. On my 26th birthday, I was looking death in the face.”
‘The doctor said, ‘How do you want to leave this hospital? With a poop bag or in a box?’ I denied consent 8 times.’: Woman with ulcerative colitis, ostomy bag says ‘you only get one body, love it!’
‘My boyfriend didn’t sign up for a sick girl. ‘I’d rather die than have a poop bag attached to me.’: Woman with ulcerative colitis learns to ‘love herself’ despite invisible illness
“How can an athletic, smart, strong young woman who has the entire world ahead of her have an incurable sickness? Even with a doctor’s note, my administration accused me of trying to get out of my contractual duties. ‘It’s ridiculous Jess keeps calling off. Does she expect us to cover her classes all of the time?’”
‘You know this isn’t a bad boob job, right?’ They saw my cancer scars and erupted in laughter.’: Woman beats breast cancer, new symptoms dismissed as ‘overreacting’ turn out to be colon cancer
“I felt so embarrassed. I started putting makeup on my scars and wearing only tube top bikinis. I started wearing a bra all the time and wouldn’t remove it during intimate times with my husband. I went from cancer free and ecstatic about the surgery results, to mortified to even show my breasts.”
‘The doctors were so shocked by what they saw in the first scan, they ordered another to ensure a mistake hadn’t been made. He told me he had never seen anything like it before.’
“I asked myself a million times ‘Why me? Why is this happening to me?’ I was in so much pain and my stay in the hospital felt never ending. It was a difficult mental space to get out of.”
‘She’s just a nervous child.’ The words still burn. I was 13, about to start high school. But I was different. My life was consumed with excruciating pain, diarrhea, and the toilet.’: Woman recounts her struggle with chronic illness
“I was standing in the kitchen alone. My phone rang. Assuming it was my husband, I answered. But it wasn’t my husband. All I could do was freeze. I was in shock. I hadn’t processed his words until I heard the ‘click.’ My body shook as I collapsed.”
‘It’s all in your head. You just need to be happier. Go take a walk, be a ‘normal’ 20-something.’ I had just woken up, still bleary-eyed from anesthesia. These were the words my doctor said to me.’
“I laid there and sobbed, how could it have come back normal? After hearing enough doctors downplay my symptoms, watching them roll their eyes as they told me it was ‘just gas,’ I stopped telling anyone how miserable I was.”
‘People think it’s gross, but without this bag of poop on my stomach, I wouldn’t be here.’: Young woman diagnosed with Ulcerative Colitis, says life ‘isn’t fair,’ but it’s ‘downright beautiful’
“Growing up, I wasn’t grateful for anything. Then I got sick. I went from picture-perfect health to being too frail to even move. I was rushed to the ER. ‘We need to act fast!’ My heart stopped, my breathing hitched, and suddenly I knew what was coming. He lowered the mask onto my face, and I remember thinking ‘please’ over and over again.”
