PANDAS

‘Beth, there’s police at your house. Are you ok?’ I found my son handcuffed to a hospital bed, drugged.’: Mom advocates for son with severe autism, PANDAS, ‘Don’t ever give up on your child’

“I locked my daughter in her room. ‘He’s gonna get me. Mama, save me.’ He bit my arms, hands, and chest, drawing blood with each bite. I begged him to stop. It was too late. He was not him. I fell beside the couch. I felt like a battered wife, except it was my child. My child who, after a rage, would cry and kiss me, looking at me with big, sad eyes, begging me to ‘fix it.’ I wasn’t mad at him. I was completely broken.”

‘I hate you! I want a different mom!’ He is getting bigger, I have to physically restrain him.’: Mom says son’s childhood has been ‘violently stolen’ due to PANDAS/PANS diagnosis, ‘It’s sad, unfair, heartbreaking’

“I wrote the single hardest thing: ‘I don’t like being a parent.’ His meltdowns consist of screaming, hitting, throwing, breaking things, slamming doors, spitting, you name it. I have to restrain him. I poured my heart out, frustrated, at my wits end. Then I got a message. ‘I think your son has PANDAS/PANS. Have him tested.’ Then the warning came: Some people don’t believe in this diagnosis.”

‘Her pupils became dilated and dark. She started wetting the bed, baby talking. My once happy daughter became angry and rude.’: Girl diagnosed with PANDAS after months of turmoil, ‘No one knows your child better than you do’

“Her eyes turned dead and hateful, and she began laughing at things that weren’t funny. If she was forced to make a decision as simple as what shirt to wear, she would rage and scream, ‘I DON’T KNOW!!!’ I had to explain to her 5-year-old sister why her sibling didn’t want to play with her anymore. ‘She’s very sick right now.’ It started as the flu, but my insticts knew better. My daughter morphed into someone else. I had to fix this.”

‘He literally turned into a rabid wild animal! His face looked evil. I couldn’t believe this was our sweet boy.’: Son diagnosed with PANDAS disorder

“He came home from school a different boy. He wanted to hide behind the couch. He snapped and growled at his siblings. ‘Did something happen at school?,’ I asked him. ‘No,’ he replied, crying his eyes out. We started noticing unusual symptoms in our younger son too. Little did I know, this was just the beginning of our nightmare. I just didn’t know what to do to help him. One of the ladies suggested I look into PANDAS.”

‘I thought she was crazy. I got a text from my dad. ‘Your mom thinks Spencer’s tics are because of strep throat.’ I blew her off. Suddenly, he began wetting the bed nightly.’: Parents shocked to learn of son’s PANDAS diagnosis

“We had absolutely no idea what was going on. His behavior was changing. He’d been in daycare since he was 12 weeks old and LOVED his school. Now he’d cling to us at drop off and require 15 hugs before we could – with him still screaming and crying- finally leave him. We assumed he was ‘going through a phase.’ I felt like we were ‘losing’ him.”

‘Overnight, our 15-month-old’s personality changed. A once easy-going child turned aggressive, OCD’ish.’: Mom learns of son’s PANDAS/PANS diagnosis, ‘There was ZERO doubt in my mind he had this’

“He would scream bloody murder to get in the bath tub, and became obsessed with wearing ‘soft’ clothes. It was like walking on eggshells since an explosion could happen at any moment for no reason. I chalked it up to him being a toddler, with a new baby brother and all the changes military life brings. Over time, I knew this was not the case.”

 Share  Tweet