PANDAS

‘The sonographer whispered under her breath, ‘Thank you, Jesus.’ I looked up to her wiping her eyes. My ‘dead baby’ was alive.’: Baby miraculously survives suspected miscarriage 

“‘Because of the chemo, he’ll likely be sterile.’ I felt my heart break as they escorted us out a side door, so I didn’t have to pass the expecting mothers in the waiting room. I tried coming to grips with the fact I may have lost the baby, but there was 1% of me that told me there was a CHANCE.”

‘Beth, there are police at your house. Are you ok?’ I found my son handcuffed to a hospital bed, drugged.’: Mom advocates for son with severe autism, PANDAS, ‘Don’t ever give up on your child’

“I locked my daughter in her room. ‘He’s gonna get me. Mama, save me.’ He bit my arms, hands, and chest, drawing blood with each bite. I begged him to stop. It was too late. He was not him. I fell beside the couch. I felt like a battered wife, except it was my child. My child who, after a rage, would cry and kiss me, looking at me with big, sad eyes, begging me to ‘fix it.’ I wasn’t mad at him. I was completely broken.”

‘I hate you! I want a different mom!’ He is getting bigger, I have to physically restrain him.’: Mom says son’s childhood has been ‘violently stolen’ due to PANDAS/PANS diagnosis, ‘It’s sad, unfair, heartbreaking’

“I wrote the single hardest thing: ‘I don’t like being a parent.’ His meltdowns consist of screaming, hitting, throwing, breaking things, slamming doors, spitting, you name it. I have to restrain him. I poured my heart out, frustrated, at my wits end. Then I got a message. ‘I think your son has PANDAS/PANS. Have him tested.’ Then the warning came: Some people don’t believe in this diagnosis.”

‘Her pupils became dilated and dark. She started wetting the bed, baby talking. My once happy daughter became angry and rude.’: Girl diagnosed with PANDAS after months of turmoil, ‘No one knows your child better than you do’

“Her eyes turned dead and hateful, and she began laughing at things that weren’t funny. If she was forced to make a decision as simple as what shirt to wear, she would rage and scream, ‘I DON’T KNOW!!!’ I had to explain to her 5-year-old sister why her sibling didn’t want to play with her anymore. ‘She’s very sick right now.’ It started as the flu, but my insticts knew better. My daughter morphed into someone else. I had to fix this.”

‘Our sweet boy became a wild animal overnight. I hid the kitchen knives, afraid of what he might do when he lost control.’: Son diagnosed with PANDAS disorder 

“The panic attacks soon turned into rages. His hands turned into claws, his face changed and looked evil. He was foaming at the mouth, hitting the glass oven door over and over, and growling. I wrapped my body around his and we sat on the kitchen floor as he thrashed and growled, tears running down my face as I held him.”

‘He would literally fling his arms out from his body over and over again from morning until night.’: Parents shocked to learn of son’s PANDAS diagnosis

“We had absolutely no idea what was going on. His behavior was changing. He’d been in daycare since he was 12 weeks old and LOVED his school. Now he’d cling to us at drop off and require 15 hugs before we could – with him still screaming and crying- finally leave him. We assumed he was ‘going through a phase.’ I felt like we were ‘losing’ him.”

‘Overnight, our 15-month-old’s personality changed. A once easy-going child turned aggressive, OCD’ish.’: Mom learns of son’s PANDAS/PANS diagnosis, ‘There was ZERO doubt in my mind he had this’

“He would scream bloody murder to get in the bath tub, and became obsessed with wearing ‘soft’ clothes. It was like walking on eggshells since an explosion could happen at any moment for no reason. I chalked it up to him being a toddler, with a new baby brother and all the changes military life brings. Over time, I knew this was not the case.”

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