parenting terminally ill children

‘If you withdraw care now, it’ll be easier to say goodbye.’ That’s not how love works. The looks of pity deepened.’: Mom births baby with Hypoxic Encephalopathy, ‘We never gave up hope’

“I sped to the house and scooped up her purple lipped, shivering body, then dropped to the floor and set her on top of my chest. We had to be on our top game 24 hours a day because if we slacked, she’d die. Discussions of death were as common as, ‘Hey, I emptied the dishwasher.’”

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