Parkinson’s disease

‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’

“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”

‘You don’t see what goes on behind closed doors. We love your family members as our own.’ Aged care worker explains she is not ‘incompetent,’ but ‘pressed for time’

“They don’t see us hold the hands of a man with Parkinson’s to ease his shakes. They don’t see us sing their favorite song quietly as we feed them breakfast. They don’t see us cry as we comb the hair of a resident who has just passed so they look presentable for their family. They don’t see us go home as a broken, shattered human who has seen more in one day than most people will ever see.”

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