“Her skin was pulled so tightly that her eyelids had flipped inside out. We were informed her limbs could suddenly detach on their own. Every day, we faced a new challenge.”
‘I rushed to the hospital. ‘I’ve never seen anything like this,’ the surgeon said. Our pregnancy checkup had gone well. There was never a reason to believe something was wrong. Our excitement turned to disbelief.’
‘Her skin hardened within seconds. It began to split. My husband’s silence scared me.’: Mom says daughter born with Harlequin Ichthyosis is ‘beauty in the purest form’
“He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’ Broken is the only way to describe the feeling as they placed her in my arms. They had never seen anything like this. She was fine; everything was perfect, and then it wasn’t. But Anna was meant for me, and I for her, and together, we will show the world what true beauty is.”
