physical health

‘My mom noticed a hole above my tailbone she could fit her pinky into. The doctors told her, ‘As long as it’s covered with skin, it’s nothing to worry about.’: Woman with spina bifida and fibromyalgia suffers from ‘back attacks’ and ‘wild symptoms’

“During birth, the umbilical cord was wrapped around my neck. In order to save my life, the doctor had to act fast. My mom’s tailbone was broken. Then like any other mom, she diligently looked over my body and immediately noticed a hole above my own tailbone. The doctors told her, ‘It’s nothing to worry about.’ But at 7 days old, I had a temperature of 104 degrees. As I grew, so did the tumor. It tightly wrapped around my bladder and kidneys, slowly killing me.”

‘Are you scared?’ she asked. Breathless, I whispered to my mom, ‘No. It’s time to rally.’ I was so close to death.’: Woman with cystic fibrosis ‘in awe’ after gifted new lungs on verge of death, ‘the kindness of a stranger saved my life!’

“The meds had stopped working – time was running out. The call came at just the right time. I remember doubling over, nauseous with the news I’d just received: ‘They have a match for lungs.’ I needed to be transported to Boston IMMEDIATELY. I crouched down by my hospital bed, struck with the magnitude of the situation. As prepared as I was, nothing could get me ready for this moment. I couldn’t catch my breath.”

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