pneumonia

‘I went home after my son’s transplant, only to receive an angry letter about the ‘eyesore’ exterior of my home.’: Woman’s son diagnosed with Stage 4 cancer, community unites to clean her home in wake of insensitive complaint

“My son kept holding his right side and screaming. They told me he was ‘just constipated’. ‘Constipation shouldn’t be making him scream.’ They thought I was some crazy helicopter mom. The doctor’s response? ‘Well, if it was real pain, you holding and consoling him wouldn’t be making him feel better like it is now.’ Boy, was she wrong. I could feel in my spirit something was wrong with my baby boy.”

‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’

“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”

‘I didn’t think twice about giving my 3-year-old popcorn. She was happily sitting when she began to cough and choke. Soon, she was wheezing. I knew this wasn’t normal. I should’ve trusted my gut.’

“I should’ve called an ambulance. I didn’t realize the seriousness of it. A few days went on and she had a terrible wheeze and was struggling to breathe. She couldn’t run, swim, or play. The doctor was frustrated with me and assured me if it was the popcorn, it wouldn’t be dangerous. Ignored my instincts.”

‘The day my baby died, I won tickets to build her a bear. ‘Can I still use them even though she passed?’ Their response? ‘No. The guest must be present.’ My heart shattered in a million pieces.’

“It felt like the perfect thing to do in order to honor and remember her. All I wanted was my baby back. I wanted to be like all the other moms who get to cuddle and snuggle their baby after they are born. A simple no would’ve been okay, but their words felt like a stab to the heart.”

‘My daughter morphed overnight. My happy girl became dead-eyed, hateful. Her pupils were dilated and dark. I felt like I lost my daughter. We couldn’t figure out how to make it stop.’

“New issues kept popping up. Screeching, laughing for no reason, wetting the bed. She couldn’t finish her sentences. She’d think all types of disturbing thoughts about hurting her little sister. I had to explain to my 5-year-old why she didn’t want to play with her anymore. I felt like a failure of a mom. I knew I had to find answers.”

‘He literally turned into a rabid wild animal! His hands turned into claws, his face looked evil. He was foaming at the mouth, and growling. I couldn’t believe this was our sweet boy.’

“He came home from school a different boy. He wanted to hide behind the couch. He snapped and growled at his siblings. ‘Did something happen at school?,’ I asked him. ‘No,’ he replied, crying his eyes out. We started noticing unusual symptoms in our younger son too. Little did I know, this was just the beginning of our nightmare.”

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