port wine stain birthmark

‘After my C-section, I heard, ‘Wow! He’s got a big birthmark on his face.’: Baby is born with Port-Wine Stain and Sturge-Weber Syndrome, ‘Never did I think I would have to consider what anti-seizure medication would best keep my child thriving.’

“A bright reddish-purple color covered more than half of my newborn son’s face. ‘Will this birthmark fade? Will it get worse? What will other people think? Can this lead to other health issues?’ Looking back now, those first months of Leo’s life, I was living in fear. I was consumed by anxiety, exhaustion, and confusion.”

‘Were you in a fire?’ ‘Did someone beat you?’ ‘No one will ever want to date you!’ It was cruel adults asking, not curious children.’: Woman born with Port Wine Stain views it as a ‘blessing’ to filter out ‘shallow, undeserving people’ from her life

“When I met my husband, he was unlike any other guy. He looked past my exterior and into my soul. He truly wanted to get to know me. He was attracted to my confidence despite of looking different. ‘I never see your birthmark,’ he always says. He never made me feel insecure like so many guys in the past. So many broke my heart, used me, kept me a secret, disrespected and took advantage of me. He never made me feel like I had to change who I was.”

‘Are you sure it’s just a birthmark? Is it contagious? That’s gross.’ I was nicknamed ‘Two-Face.’: Man with Port-Wine Stain overcomes harsh bullying, urges ‘it’s helped me change lives’

“As a child, we moved a lot. There were always rude comments. ‘What is that red thing on your face?’ Because of my birthmark, I never had a girlfriend in high school, never went to the prom. When my dad asked me if I wanted to get treatments, I refused. ‘The only thing worse than a giant birthmark on my face would be a giant swollen, burnt and scabbed birthmark on my face.’ I had no idea it could get progressively worse.”

‘I can’t! I can’t leave the house without makeup!’ I was shocked. He looked me in the eye. ‘You can’t, or you won’t?’: Woman embraces port wine stain birthmark after years of ‘feeling ashamed, insecure’

“I waited after I had my son to start treatments. The swelling, bruising and scabbing made me feel worse than my red, bold birthmark. I was miserable stuck at home, hiding, waiting for it to heal. I asked my husband if he’d get me In-N-Out. ‘Yeah, let’s all go.’ I was in shock. Why would he think I’d leave the house with my face all bruised and swollen if I can’t even leave the house with my birthmark in its normal state?! That’s when I lost it. Tears streamed down my face.”

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