POTS

‘He said I was a hypochondriac and was faking. ’You must be enjoying the attention.’ I became extremely nauseous, dizzy, shaky, and felt like I was going to pass out.’: Woman with bulimia, POTS, MCAS, EDS struggles for symptoms to be believed

“I don’t remember losing consciousness. Everything happened so fast, the next thing I can clearly remember is lying flat. I was sitting there, in a wheelchair, and he said I was a hypochondriac and was faking. I left his office in tears.”

‘When you see me in a handicapped parking spot, you roll your eyes. My husband explains, ‘She doesn’t get better from this. She ultimately dies from it.’: Woman with multiple chronic illnesses urges ‘not all disabilities are visible’

“When you see me in a handicapped parking spot, you might glare. You may even be like those who have said something rude or left a nasty note on my windshield. I sport titanium rods and screws that go from the base of my head to my mid-back. You wouldn’t know by looking at me I have a terminal illness.”

‘If we waited 2 more weeks, you would’ve been paralyzed from the neck down.’ I was in and out of consciousness. Death wasn’t the only thing on my mind.’: 15-year-old undergoes brain surgery after feeling dizzy, discovers rare chronic brain condition, Type 1 Chiari Malformation

“I knew something was very wrong. I was barely able to hold myself up. ‘Really Jen? Pull it together.’ No one had answers. All I heard was, ‘I think you’re depressed.’ I felt like someone had filled my head with cement. At this point, I had given up. I convinced myself I was out of my mind. I laid in that MRI machine and lost track of time. I felt like my life was over at 15. The tech pulled up the images on the computer. ‘You’re going to need a neurosurgeon.’”

‘It’s just anxiety. It’s all in your head.’ I was on the floor, barely conscious. Something wasn’t right, and Ruby knew it.’: Woman diagnosed with POTS, genetic mutation with help from psychiatric service dog

“My dog Ruby was acting extremely odd towards me. I didn’t think anything of it. Then, paramedics arrived. By then, I was barely conscious, being rushed to the ER. I didn’t expect it: ‘The tests came back. It is life threatening and life expectancy is 38 years old.’ That hit me hard. I gave the doctor a nod and a quiet, ‘Okay.’ I was speechless. I didn’t know how to break the news to my fiancé.”

‘My left shoulder dislocated talking to my mom. She was mortified. ‘AHAA!,’ he said.’: Young woman recalls ‘party tricks’ as joints dislocate after Ehlers-Danlos Syndrome diagnosis

“I woke up with a sore knee. We ignored it… until the pain became unbearable and was spreading. It all happened so fast. I was too overwhelmed to be scared. However, I was confused. We all were. The tricks I used to gross my friends out ended up being a piece of the puzzle. Hyper mobility, one of the most obvious symptoms of EDS.”

‘I smashed my head on the glass coffee table and woke up with no idea what month it was. In tears, my mom called the geneticist. If I wanted to keep living, I NEEDED a service dog.’ Woman recalls how dog has saved her life ‘countless times’

“The last thing I remember was yelling for my mom. She raced up the stairs, only to be shocked. My tiny puppy had grabbed onto my sweater and was pulling with all of his might in the opposite direction to keep me from falling off the toilet and getting yet another concussion. If you talk to any dog mom they’ll tell you their dog is their world, but my dog GAVE me my world.”

‘I was out at a restaurant. ‘I’m not feeling well,’ I said. I knew something was wrong. Shaking, I excused myself and drove straight home. When I got back, my world crumbled around me.’

“I crawled to the bathroom. I couldn’t stand up without blacking out. I was paralyzed. I was supposed to be getting ready to go off to college with friends and I suddenly found myself unable to get out of bed. The wheelchair made others roll their eyes. ‘You don’t need that,’ they said. ‘Faker.’

 Share  Tweet