“My baby was going to have to endure the unthinkable, and there was nothing I could do.”
‘He’s still the boy you love dearly.’ We thought he was a happy baby. I had NO idea he fought for every breath.’: Mom welcomes baby with congenital heart defects, ‘He’s a force to be reckoned with’
‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis
“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”
