rare disorder

‘He’ll have severe disabilities.’ Each smile is priceless. We have an even greater appreciation for the ‘little things.’: Mom advocates for son with undiagnosed condition, ‘He’s one of a kind’

“Our 6-week-old son lay in a hospital bed next to us, all hooked up. The prognosis was grim. Watching your child have seizure after seizure, knowing there’s nothing you can do, is gut-wrenching. He might not understand what’s happening, but he’s so strong.”

‘We walked through the door. His first word was, ‘DADDY!’ He lived his whole life in foster care. Weeks later, we found out we were pregnant!’: Bereaved mom adopts boy from foster care, births 3 sons

“The social worker asked, ‘What ethnicities are you open to?’ We sent Jonah a video of us, a stuffed animal, and a security blanket with our scent so it would be familiar. Every night, he slept with the stuffed animal and blanket. He watched our video, over and over and over again. We just ‘knew’ he was meant to be ours!”

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