“I was swiftly and abruptly thrust into an entirely different world than any of my friends. I sat alone in the grief and stewed.”

‘We don’t know anything for sure, but…’ The doctor sat down with a grave expression.’: Mom gives birth to son with ultra-rare chondrodysplasia punctata

‘She’ll catch up in her own time!’ My instincts told me more was at play. It’s my JOB to protect her.’: Mom becomes advocate for daughter with KAND, neurological disorder, ‘We’ll ALWAYS celebrate who she is’
“‘You’ll now be Colbie’s medical experts.’ I didn’t want to hear it. I wanted to hear ‘this is how we can make it all go away.’ I chose to focus on how amazing she is.”