“Every day, I made silly faces, weird sounds, and looked like a crazy mom, all in the hope he’d smile. Everyone told me not to worry, but my intuition was telling me something else.”
‘I was in shock. My sweet little boy was never going to smile.’: Mom births son with Moebius Syndrome
‘Mom, what’s wrong with that boy?’ She was looking at MY boy. It broke my heart forever.’: Mom advocates for son with rare genetic abnormality
“The doctor tried to comfort me. ‘I see it very often.’ Then she looked at him. What we found was worse than we could ever imagine.”
‘We don’t know anything for sure, but…’ The doctor sat down with a grave expression.’: Mom gives birth to son with ultra-rare chondrodysplasia punctata
“I was swiftly and abruptly thrust into an entirely different world than any of my friends. I sat alone in the grief and stewed.”
‘She’ll catch up in her own time!’ My instincts told me more was at play. It’s my JOB to protect her.’: Mom becomes advocate for daughter with KAND, neurological disorder, ‘We’ll ALWAYS celebrate who she is’
“‘You’ll now be Colbie’s medical experts.’ I didn’t want to hear it. I wanted to hear ‘this is how we can make it all go away.’ I chose to focus on how amazing she is.”
