rare

‘No eyebrows and eyelashes,’ she said. I hadn’t noticed his lack of hair. She ran her hand across his sweet face. There was a concern.’: Mom learns of son’s rare CFC syndrome disorder, but keeps ‘pushing forward’

“Our midwife came in and hugged me. ‘How are y’all doing?,’ she asked. It was all too much. What did she mean by ‘abnormalities?’ I stopped her and asked. That’s when the rest of the conversation disappeared from my memory. I would NEVER let this define Nolan.”

‘He opened his eyes, and held my hand. ‘I love you too, but this is ridiculous.’ He proceeded to remove his oxygen mask. It was such a Dan thing to do, to choose his time.’: Woman loses her husband to cancer

“‘How did you meet Becca?’ I was sitting with my nose in a book when he plopped himself down. ‘Hi, my name is Dan,’ he said, matter-of-factly. I will never forget that night. Little did I know – he’d become my future husband. He passed away just 16 days after we said ‘I do.'”

‘I’ve never had real parents before. I’ve waited my entire life to be treated the way y’all treat me.’: Couple adopts 18-year-old who was ‘abandoned by his birth mother with no name’

“‘So you are the people that want teenagers… are you crazy?’ I said, ‘Something like that.’ She replied, ‘Well, I got a phone call in your driveway for a 16-year-old male who needs a home by tonight.’ I told her, ‘Bring him home.’ My husband looked at me like I was crazy. But he agreed. ‘She’s right, bring him home.’”

‘My mom rushed in shouting, ‘Get up! Get up! I need you to keep your dad from getting out of bed.’ I sprinted to their room. ‘911? This must be serious! My mom is running, she never runs!’

“My dad was a zombie. He groaned this horrendous noise. As tears rushed down my cheeks, I ran over. There was a surprise guest waiting to pick me up. ‘They are not sure your mom is going to make it,’ he said. ‘But everyone said it wouldn’t be like my dad!,’ was all I kept repeating.”

‘My appendix ruptured while pregnant. ‘She is perfectly healthy,’ the doctor reassured. He was so incredibly wrong.’: Mom births baby with craniosynostosis, ‘she is perfectly imperfect’

“The ultrasound photos showed a perfectly formed body, 10 beautiful fingers and toes. Once born, she cried out one time and then fell silent and blue. Her nasal passages were blocked by bone and my placenta was torn to shreds. Avery’s condition was so much more complicated than any of the photos led us to believe.”

‘Let them just hold their baby.’ He looked different. I’m filled with gratitude for her compassion.’: Couple learns of newborn’s rare genetic syndrome, encourages others to see ‘grace’ in their journey

“As we calmly talked on that moon-lit drive, my husband said something to me I’ll never forget. He broke a short silence. ‘If anyone would be trusted with a special-needs child, it would be you. You have the grace and patience to do this.’ I’m overjoyed knowing we’ve been included in an elite club.”

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