rash

‘Almost there, almost there.’ I watched him struggle. I knew something was going on in his heart.’: Adoptive mom reminds traumatized son he isn’t ‘alone’ anymore

“That first summer he came, all I can remember is the rash that covered my body for 6 months. It was my body’s way of telling me it was too much. I didn’t know how to be a mama to a then 7-year-old. As I walked beside him, I told him he never has to do that alone anymore. He looked up at me with his chocolate brown eyes. ‘Mommy, it sure is much easier to carry things together.’”

‘I wondered why my doctor had such a grave tone when she gave me the diagnosis. This sounded like no big deal at all. There was finally a name for this mysterious illness! Boy was I wrong.’

“When I was riding the subway, I started to feel a little dizzy. I physically could not move. When the doors finally slid open, I spilled onto the platform packed with hundreds of commuters. My breathing and vision slowly returned. I finally realized this was serious. It had to be my priority.”

‘We have a baby who cries for hours, with a mysterious rash. Bright red, with a distinct swirl-like pattern. We had fallen under the radar, but my mama instinct knew we were dealing with more.’

“We were prepared to keep pushing until we were satisfied! Then she paused. ‘Unfortunately I have something else very important to tell you.’ I looked over at Dane, unable to speak. His face was so pale I thought he was going to pass out. My heart now felt like it was going to beat out of my chest.”

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