rheumatologist

‘I didn’t feel sick, I didn’t look sick. Yet, my body was attacking itself AND my baby.’: Woman’s ‘leg swelling’ dismissed as ‘old age’ at 33, later diagnosed with Lupus

“My family and I were on our way to a cruise vacation when my doctor called, asking me to come in. ‘I don’t think you should go on that vacation,’ he said. What the heck?! Oh no, I was going on vacation! Then, he gave me a quick and dirty update on my situation. I felt like I was in a dream state. I started to cry. I pride myself on being very strong and independent, but in that moment, I was TERRIFIED. I wasn’t sure I’d be around to see my children grow up.”

‘She seemed off. Not eating, stomach aches, lying around. The pediatrician basically laughed at Tim, confused why they were there. How did all the doctors miss it?’

“It started with a fever, and then her limp would get bad and she would be up all-night crying and screaming in pain. Eventually she slept in our bed because I couldn’t keep going back and forth to her room. What about our other daughter, Lily?! We were going to have a new baby almost any time! I immediately left the room and sobbed.”

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