scoliosis

‘I wouldn’t step out of the house in shorts or skirts because of the scars on my legs. ‘Why me?’ I was tired of crying out to God.’: Woman with rare Ollier’s Disease disorder and Scoliosis finds self acceptance, ‘I was handpicked’

“I became so caught up in trying to appear ‘normal’ I began to lose myself. At the end of the day, I felt like I was living a double life. I would often wear long sleeve shirts or jackets to hide my left arm. I wanted people to look beyond the scars and differences.”

‘Calm down a little. Sleep it off.’ My baby had an egg-sized lump on his skull. I was told I was ‘just a stressed out momma.’: Baby diagnosed with Chiari Malformation after mom’s concerns brushed off for months, ‘I’m so glad I trusted my gut’

“Rowen’s skull was swelling. He started grabbing his head constantly and screaming. He was throwing up non-stop and couldn’t even turn his head. I kept hearing time and time again from doctors, ‘You just need some sleep.’ It got to the point where every time they saw me, they asked, ‘Are you getting sleep? You need it badly.’ I started to doubt myself. Was I going crazy? But deep down, I knew something wasn’t right. I decided to go with my gut. Enough was ENOUGH.”

‘It hurts,’ she’d cry telling me. I noticed a significant change in my daughter’s posture. My mother’s intuition told me to seek a 2nd opinion.’: 12-year-old girl endures 8-hour surgery for scoliosis, ‘This girl’s strength amazes me’

“We were hit with the bomb. ‘She definitely needs surgery,’ the doctors said. I was sick to my stomach. My baby girl has never even been to the ER. She’s always been a very active girl that cheered, danced, competed. How was this going to affect her? ‘This will be the roughest 8 hours of your life while she is in the OR.’ He would end up being right. I was numb the whole time.”

‘There’s something wrong with her!’ My mom looked at my triangular-shaped face.’: Woman with rare form of Dwarfism defies ‘grim’ life expectancy, ‘never gave up’

“My mom was pregnant with twins when doctors quickly realized I was growing a lot slower and smaller. Being a nurse, she knew diagnosis was grim. My dad got a call from my mom saying her water broke and he needed to get back to the hospital as fast as he could. Baby A, which was me, was ready to come out and see the world! Everyone else was not.”

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