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‘Sit down, sit down!’ I fell, hitting my head on the concrete floor. It’s so hard to deal with and so scary.’: Young woman’s harrowing journey to Chronic Fatigue Syndrome diagnosis

“I’ve had random fainting spells since I had my very first period. I told the lady next to me, ‘I am going to pass out.’ I remember bending my knees, and then I was out. Doctors kept going back to my blood sugar, but I knew that wasn’t it. This is when all my issues began.”

‘It looked like she was doing a stomach crunch. Both arms and legs came together in the air. This went on for hours.’: Mother thrilled to have her ‘happy baby back’ after Infantile Spasms diagnosis

“We first noticed a weird movement when she was 5 months. Doctors said, ‘It’s just gas. Change her to soy milk,’ and, ‘It’ll pass.’ It wasn’t until her dad decided to search ‘spasms,’ that we began to gain insight into this nightmare. Something in me snapped. She was using our daughter for her own research. ‘I’m so sorry baby,’ her dad always said. Through all this, Salma has never shown signs of giving up.”

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