seizure

‘I’m going to pass out.’ She yelled, ‘Sit down, sit down!’ I bent my knees and that’s it. I fell, hitting my head on the concrete floor. This is when all my issues began.’ Young woman’s harrowing journey to Chronic Fatigue Syndrome diagnosis

“I started a job at a hospital. I got stuck with a dirty needle and had to get blood work done to protect myself. The nurse started drawing my blood, and it was going everywhere. ‘I’m about to pass out,’ I told the doctor. I woke up to them all holding me, telling me once again, I had a seizure. I knew something was wrong.”

‘I was sent home alone in an Uber in the middle of the night. ‘Just tell me your name!’ I couldn’t remember for the life of me what it was. All I could do was cry. That’s the only thing I remembered how to do.’

“I’ll never forget how I felt. I seemed hungover, except that wasn’t the case. My doctor told me, ‘Have you ever thought that it might be all in your head?’ Everything began to take a turn. I was once the quick-witted friend who always had a joke. Now I was the girl in the back of the classroom, crying because I didn’t know how to be a person anymore.”

‘I’m scared. I don’t want to do this without you,’ I told him. ‘This isn’t goodbye. I love you so much. I have no regrets.’ I was in denial. He was the best thing that ever happened to me.’

“We dated for 4 months, were engaged for 6 months and got married. Now we were in the hospital. I walked down the long, cold hallways to see my husband, my heart pounding out of my chest. I saw it right away. He was not the same. Something had changed. This is where I came undone. I was losing him.”

‘Life changed in a heartbeat. I dropped to my knees on the kitchen rug, a horrible sensation ripping through my nerves. My skin felt like it was trying to harness golf balls wildly in my veins.’

“I had never been a ‘sick’ person. I had only gone to the hospital for labor. I didn’t even have a cavity! Now, my kids were crying. My husband was on the phone with 911. I froze. ‘It’s happening again,’ I screamed. My arm moved wildly on its own. Everyone began to scramble.”

‘Caleb fell off the couch. Something is wrong,’ my babysitter’s boyfriend told me. My heart stopped! ‘I’ll be right there!’ She was holding my son who was NOT crying. His eyes were closed.’

“I went back to work after maternity leave. I felt pretty good about the babysitter I found. She had a baby of her own whom she stayed at home with. I met her boyfriend (father of her baby). For two weeks, I went over on every lunch to check on him. Then I got the phone call.”

‘We are having a problem. Your baby is floppy and turning blue. She only has a 50% chance of surviving through the night but we’ll do everything we can.’ 

“I woke up suddenly to the sound of my husband’s footsteps coming up the stairs to give me his phone. ‘Something has happened to Drew. He’s had a seizure. We were on our way to the park.’ I remember thinking to myself, ‘I have experienced seizures in the past. He’ll be OK.’ Second phone call. Everything was a blur.”

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