“I want to watch you grow up. I want to see what you wear on your first day of school, who you fall in love with. I don’t want to miss a moment. If I wake up, I will fight for you every day. If I don’t, please don’t ever doubt the power of my undying, unrelenting, never-ending love for you.”
‘If I have surgery, I might not wake up. If I don’t, the tumors will grow, killing me anyway.’: Mom with 23 tumors pens heartbreaking love letter to her sons
‘My daughter came home from preschool different. She was biting herself. She stopped speaking, sleeping, playing with toys. I could no longer write it off.’ Mom receives Rett Syndrome diagnosis, told it’s ‘one of the most severe cases’
“I get a call from the geneticist. The call drops 3 separate times. The most important call of our life and I miss it. I sit and wait. My phone rings again. He says, ‘Genetics just confirmed Evie has Rett Syndrome.’ He says, ‘There’s no cure. We can’t change it. You can’t do anything.’ My heart sank. This was serious.”
‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’
“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”
‘I’m so sorry. He fell into the swimming pool.’ He was found with a blanket he would put over his head, and his little bicycle.’: Mom’s heartbreaking plea to use pool nets because ‘freak accidents happen’
“My car keys had been stolen, and while waiting for assistance, my mom was watching my 2-year-old son at our home. As we loaded our luggage into our car, my phone rang. It was my mom, weeping. My heart sank – I immediately knew Kaeden was harmed.”
‘I got caught in a snowstorm. My car tipped off a mountain road and landed in a 15-foot ravine. I grabbed my dog, zipped her in my jacket, and scrambled up a hill.’ Car accident triggers woman’s ‘tonic clonic’ seizures
“It took them two days to find my white car in all the fresh snow. Surprisingly, nothing was broken. Once thing’s seemed to be falling into place, that’s when my first seizure happened. I went face down onto the hardwood floor.”
‘Sit down, sit down!’ I fell, hitting my head on the concrete floor. It’s so hard to deal with and so scary.’: Young woman’s harrowing journey to Chronic Fatigue Syndrome diagnosis
“I’ve had random fainting spells since I had my very first period. I told the lady next to me, ‘I am going to pass out.’ I remember bending my knees, and then I was out. Doctors kept going back to my blood sugar, but I knew that wasn’t it. This is when all my issues began.”
‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’
“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”
‘Life changed in a heartbeat. I dropped to my knees on the kitchen rug, a horrible sensation ripping through my nerves. My skin felt like it was trying to harness golf balls wildly in my veins.’
“I had never been a ‘sick’ person. I had only gone to the hospital for labor. I didn’t even have a cavity! Now, my kids were crying. My husband was on the phone with 911. I froze. ‘It’s happening again,’ I screamed. My arm moved wildly on its own. Everyone began to scramble.”
‘My head and spine rolled. The playground monitor watched me fall off the monkey bars. Kids called me ‘freak’. I didn’t see my spine tic as a problem, but her concern made realize something was wrong.’
“I could hear unkind comments coming from behind and in front of me. I broke down crying and tried to get away as fast as I could. When I got the news, it was a relief to say, ‘This isn’t me trying to be annoying.’ It was uncontrollable.”
‘He’s not breathing!’ His entire arm was jerking. What was going on?! ‘He was just screaming! How could he not be breathing?’ Then my phone rang.’
“He was admitted to the hospital ‘just to do some routine stuff’ since he was young for such a high fever. I didn’t love the idea, but I was willing to do whatever was needed. Then something unexpected happened. Trevor started screaming. The nurse reached for the ‘Code Blue’ button on the wall.”
