sensory issues

‘No Jack! No doctor!’ I hold him tightly, feel his heart beating. It is heart breaking. I question why I put him through what feels like torture.’: Mom thankful for affectionate siblings who help calm autistic brother, ‘It just melted my heart’

“I have had to physically put myself between our boy and the floor so he doesn’t hurt himself by banging his head in frustration. It is heart breaking. I make sure to bring Jack to all of his siblings’ visits as well. WHY?! These rare moments. ‘Oh Jack, I’m not hurt. Give me a hug!’ She assured her anxious brother. ‘See Jack, Maddie is okay.’ Olivia whispered into his hear. It quickly became a sister sandwich. How beautiful is that?”

‘My son chooses to wear makeup, dresses. ‘But…what if he catches The Gay?’ Well, then I’ll have a gay son. Simple as that. It’s a non-issue.’: Mom embraces son’s fluid gender expression, ‘it’s their body, their choice’

“My son has had autonomy since he was a toddler. As he grows, he makes as many decisions about his own body as possible. Our only limits are safety and hygiene. We often hear, ‘…But..but…but…it’s PINK!’ ‘Why don’t you just cut your hair like a boy?!’ ‘That’s for girls, you don’t want that!’ He informs them with absolute integrity, ‘No, it’s for PEOPLE!’”

‘I hate you! I want a different mom!’ He is getting bigger, I have to physically restrain him.’: Mom says son’s childhood has been ‘violently stolen’ due to PANDAS/PANS diagnosis, ‘It’s sad, unfair, heartbreaking’

“I wrote the single hardest thing: ‘I don’t like being a parent.’ His meltdowns consist of screaming, hitting, throwing, breaking things, slamming doors, spitting, you name it. I have to restrain him. I poured my heart out, frustrated, at my wits end. Then I got a message. ‘I think your son has PANDAS/PANS. Have him tested.’ Then the warning came: Some people don’t believe in this diagnosis.”

‘A manager told me there was a noise complaint of a baby crying. ‘He did not cry, he giggled twice.’ I was told I immediately had to pack up to leave.

“Kristopher looked at me and said, ‘Mom why did we have to leave?’ ‘Are you kidding me? He did absolutely nothing.’ Then she says, ‘Well, can you come another day to see it?’ I looked at her. ‘I work full time. Do you realize what an achievement it is for me to take my boys to see this? I don’t understand why I am being kicked out. Are you serious?'”

‘If it makes you happy.’ My son begged to wear a dress. In our house, kids explore who they are, no restrictions.’: Mom embraces ‘atypical’ son, ‘kids deserve to be happy and free’

“At first, it was little things. Nails, glitter, flowers, pink and purple. Then, one day, he came home crying because he wanted to wear a dress SO badly. He decided upon his sister’s light pink frock. I could see the pure joy on his face and how beautiful he felt in it. The next day at school, I heard parents snickering as we walked by. But Levi didn’t. He was far too joyous to even notice.”

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